Experiences With Completion Proctectomy And Hernia Repair

Experiences with Completion Proctectomy and Hernia Repair

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SoeL

Apr 09, 2018 4:54 pm

Hi anyone. Just joined and seeing if anyone else has had this procedure I’m having. I had my subtotal colectomy, ileostomy in November 2016. Due to many complications including twisted stoma, refashion, infections, being opened up another 4 times, blockages, sepsis etc I didn’t come back out of hospital until April 2017, it was pretty rough. Unfortunately I was unwell all year and went in for more surgery in January but just as I was being wheeled down to theatre we were turned back as the ICU was full.... so that’s the history and now on Wednesday the 11th April I’m going back in and hopefully the surgery will commence.

I am having my large incisional hernia with loss of domain repaired with restructuring and mesh, stone hernia repair, bowel resection and completion proctectomy all done at the same time. So I’m really asking if anyone had had all this done at the same time and how they found the recovery?

I don’t generally post on these forums but I am just looking for any advice.

Thank you

skidder

Apr 16, 2018 3:06 am

Hey Soel, you've some medical history.

i too had an ileostomy...in 1971 and was in Bethesda Naval Hospital for six months. I had a proctocolectomy in 1979 and a revision. Had surgeries in 1988, 2002, 2008, 2015 and 2016. I cannot convince the surgeons to install a nylon zipper or better yet to have a drive thru where one could drop off your gut at 0800 and pick it up at 1700! 😱

In 2015 I had my second hernia repair with a revision. When I had my proctocolectomy in '79, it took awhile for me to bounce back but I did and now realize it all had to be done in order for me to be alive today. So my surgeries were all done over many years but I feel like I know what you're going thru and you will do fine. It takes positive thinking and a good attitude. With those two things on your side, and time for healing and adjustments to 'plumbing', I hope and pray you're back on your feet in no time.

Skidder

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Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha