Hi just looking if anyone has had or have got a hernia under therir stoma as I had that a year ago and they put a mash in me nad now the hernia has pushed out the mash and is back again.... I am currently awaiting on my op but I have so much pain in the spot of my bag and under it my belly is like a volcono on 1 side, would so like to here from anyone else who have experience this. thanks x
BayGal
May 03, 2018 12:53 pm
iMacG5
May 05, 2018 2:06 am
Hi BayGal. So sorry you're going through this and I can't offer any help. I do have some experience with a hernia which I was able to control with a hernia belt from NU HOPE LABORATORIES. They'll fit you perfectly with the help of your doctor to keep things in place.
Wishing you the very best and a speedy recovery.
Sincerely,
Mike
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Posted by: iMacG5
About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike
Bill
May 05, 2018 5:22 am
Hello Baygirl. Like Mike, my situation is that I have a gernia but decided against any more surgery in favour of hernia belts and plugs to keep the hole from closing over. I read an article a week or so ago which said that there was an investigation going on at present into surgical mesh because too many prcedures were going wrong, necessitating more operations to remove it. I look forward to seeing the results of the investigation as it has implications for ostomates contemplating this way forward.
Best wishes
Bill
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Skidude
May 21, 2018 3:12 pm
Welcome to the world of ostomies...a parastomal hernia is almost a given. Have had 4, three with the standard keyhole mesh repair that has a 65%+ failure rate. My last one was repaired using a modified Sugarbaker proceedure 96% success rate (google search). Not many surgeons in the US know about or perform the surgery. I went to Philadelphia to have mine done last November and at this point - 6 months post op - very happy with the results.