Managing High Output From An Ileostomy

Mattw

May 23, 2018 10:25 pm

Hi everyone I'm new to this site and would really appreciate some tips on ileostomy high output.

I had an emergency operation 10 weeks ago on the 17th of March and woke up with a bag stuck to my stomach. My stoma nurses have prescribed me 48 mg of loperamide which I take daily 30 mins before eating. The out put is so inconsistent I can empty the bag 20 times a day on a bad day and 3 or 4 times during the night which just leaves me exhausted the next day and also makes me feel so low.

I would really appreciate some advice on good foods and drink that will make the output more consistent?

Thanks guys.

Matt

vdahl

May 24, 2018 2:39 am

Very helpful

Hi Matt,

I'm sorry that you woke up to such a surprise. My output was very inconsistent for the 1st several weeks too, but it does sound like you're off the charts with output. I was told (by the surgeon) that I could take up to 3 Imonium to get through the night. Is your output really liquid? Have you worked with an ostomy nurse at all? Not sure where you are or what sort of information you were provided with but there is a list of foods that will help with specific issues.

FOR ME, eating pretzel rods and applesauce is the only thing that helps change the consistency to the thicker, paste type they were looking for. It also helps me so I can get the appliance changed more easily. I was also told (by an ostomy nurse) to take metamucil in 4 oz water- start with a tablespoon and work up to 3. It's opposite of what you would take for constipation in 8 ounces/water.

Some say bananas, marshmellows and that sort of thing helps.

I'm sure you'll get a ton of information. I hope you get some relief. Good luck on your recovery.

Vicki

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Bill

May 24, 2018 5:24 am

I agree with Vicky and her nurse - Metamucil works. However I had a job to find it in the UK so you might have to order it on the internet. The psyllium husk they sell here is not the same in consistency, taste or effect so be warned!

Best wishes

Bill

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NJ Bain

May 24, 2018 2:31 pm

Very helpful

Mattw,

Welcome to the site! I'm sure you will find an abundance of support here. There have been several posts on this subject. Check out the link below from an earlier post.

https://www.meetanostomate.org/discussion-forum/viewtopic.php?t=8458&highlight=

You will see the ostomy food chart link there and in the last column are some foods to eat to control diarreha or in our case, high output from our ileostomies. Eventually, you will get to know what foods thicken your output.

But I always emphasize that you need to chew your food up VERY, VERY well. Your body is still pretty new to having an ostomy and it will take time to adjust. Your small intestine will start to absorb more for the lack of a large intestine and your output will eventually start slowing down. It's also important to stay hydrated. I would suggest the UK equivalent to gatorade or pedialyte.

Hope this helps. Let us know if you have anymore questions.

Bain

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maddie50322

May 25, 2018 4:28 am

So yes it will be a little bit longer before your body really regulates. Certain foods seem to make thicken output depending on the person. For me I have noticed Pasta and Potatoes do. Talk to your ostomy nurse and surgeon as well. Don't eat or drink anything 3 hours or so before bed. Also there are high output bags out there. So look into that,.

Managing High Output from an Ileostomy

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