Hi, I wondered if anyone has experienced mucus from the back passage after a colostomy? This is happening every two weeks and as I have no control over my bowel muscles, I am not able to hold it in until I get to the loo. It is making me miserable and not wanting to go out unless I can be sure to be near a loo. I have to carry a change of clothing as well as my stoma bags. I have been advised to use an enema once a week, but this is the reason I had the colostomy in the first place. I have used enemas for 30 years and thought I was finished with all that.
Rayofsunshine
Jun 14, 2018 4:38 pm
Hermit
Jun 14, 2018 5:28 pm
Had severe mucus. Like you, couldn't go public. About 6 months, it stopped! All of this takes time,
Sasquatch
Jun 14, 2018 6:24 pm
Yes, mucus passage is normal if you still have the rectum and anus intact. It still continues to try and do its job. If you don't ever plan on or can't have a reconnection, removal of what you have left in the back end might be worth looking into. I had my ileostomy done about a year and a half ago, I still have mucus discharge every day. I'm hoping to have my rectum and anus removed this fall.
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Posted by: SharkFan
Good Evening Bob and All,
I checked my email and saw new postings. That's when I usually visit the site. I've recently met a few others who have developed UC and have made contact with them. I've directed them to this site. I also use the site to look up concerns they or I have. This site has been unusually helpful to me. I have seen questions and concerns of others posted. After I scroll down and see similar comments that I would make, I don't comment. As for social media interest, I have a Facebook account (due to work). As of this date, I have one Facebook Friend (and don't even know how that happened). I find the content here more relevant to my life. Then again, I'm old school. If I want to see how a friend is doing I just make a call.
Stay Safe and Sane all. Back to the hockey game,
SharkFan
Rayofsunshine
Jun 14, 2018 9:53 pm
Thanks for your reply. Seeing a surgeon in September, so hopefully they will recommend the operation.
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Bill
Jun 15, 2018 5:34 am
Hello Rayofsunshine. Gresat question and some good replies. This subject comes up regularly and there are previous posts you might be intersted in - to be found in 'Premium Content'.
Best wishes
Bill
Living with Your Ostomy | Hollister
Donz14
Jun 15, 2018 10:21 am
Hi
I believe everyone gets this to some extent unless you have had the full opportunity to remove your rectum. See if this website helps:)
http://www.colostomyuk.org/wp-content/uploads/2016/09/CA021-04v01r00-Rectal-Discharge.pdf
Newbie Dana
Jun 18, 2018 7:30 pm
Use a panty liner or sanitary pad (especially the non-bulky ones), just placed a bit farther toward the rear. If you use the pads with wings, it holds everything securely in place. Then don't worry about mucus discharge, and go about your day securely, just like when you have (or used to have - not sure of your age) your period. Truly works. Don't sweat it. And it's a lot less trouble than using an enema!
Lt. Dan
Jun 19, 2018 2:42 pm
That is totally normal, I wish I had it every two weeks. I was having it every other day for 9 months. I just had my rectum (20cm removed) what was left from my original surgery. It was inflamed and bleeding with severe bleeding for the past 9 months. No meds could stop it. My anus was removed also on May 28th. I'm recovering now at home. Was in the hospital for 11 days. Then released with a small infection then back in to the hospital 3 days later. It was a terrible experience. 7 days more in the hospital to get the infection under control. Now I'm doing much better.
Lt. Dan
Jun 19, 2018 2:43 pm
That is totally normal, I wish I had it every two weeks. I was having it every other day for 9 months. I just had my rectum (20cm removed) what was left from my original surgery. It was inflamed and bleeding with severe bleeding for the past 9 months. No meds could stop it. My anus was removed also on May 28th. I'm recovering now at home. Was in the hospital for 11 days. Then released with a small infection then back in to the hospital 3 days later. It was a terrible experience. 7 days more in the hospital to get the infection under control. Now I'm doing much better.