Advice for Managing Stoma Retraction from Personal Experience

Replies
2
Views
2303
Seasoned Osto
Jul 23, 2018 11:31 am

Have had an ileostomy for 22 years now.  Stoma retraction has happened quite a few times over the years.  Honestly have been able to trigger it to food allergies or a continuous supply of bacteria in water ( well water and just add peroxide pump and that will solve the the well water issue & if that is too expensive, adding peroxide to your drinking  water really helps, and it only has to be to the water that is not boiled, and possibly your bath water could benefit

 

For the food allergies, can have coffee but not have coffee with cream, and sunflower seeds  We can have food allergies with knowing about it.  It happens when I have more of the product, ie 3 or 4 cups of coffee or a whole bowl of sunflower seeds.  Had to eliminate eggs out of my diet.

 

But it so worth it, figuring these things out.  Been to the doctor and nurse on retraction, and they can't fix it, and I was not about to have another surgery as the problem can arise again.  

Been working great for me, so just want to share with others.

 

 

 

 

Bill
Jul 24, 2018 5:24 am

Hello Seasoned Osto. Thanks for sharing you experiences. I found your post very interesting.

Best wishes

Bill

Justbreathe

MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.

Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.

For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.

Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.

I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.

Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼

Mrs.A
Aug 05, 2018 11:08 pm

This is interesting, glad you shared it with us.