I currently do not have an ostomy but am seriously looking at getting one, and I would appreciate the input. If this is the wrong place to ask, please let me know.
I have struggled with severe constipation my whole life (since infancy) and have literally tried everything (pills, diets, therapy, etc.). I have had all of the tests done, and everything comes back normal, much to the confusion of all of my doctors. I only have a bowel movement once every 4-6 days, and it is an all-day process. It takes my body 24 hours to recover before I can actually get out of bed and function.
I have had many gastroenterologists, and my current one of 3 years has given up on me and has sent me to a colorectal surgeon. I went to one, and she said if it really is a hindrance on my life (which it is, as I cannot hold down a normal job as there is no way for me to track when it will happen, and I cannot leave the house when it does), that she can offer me an extreme option, which is an ostomy. I ended up getting a second opinion, and they agreed that while extreme, it may give me back my quality of life, and that she has done this procedure for others similar to my age (25). It is difficult, however, for me as I do not have an actual diagnosis. And I have been told that because I do not have a diagnosis and because they don't know why it is happening to me, that I will have it for the rest of my life with no option of a reversal.
My question for you all is, for those of you who felt home-bound before (as I do), do you feel more freedom after? Or less? I know that there will be challenges, and that it is not a cure-all, but I have tried all other options, and there is nothing more they can do for me. Any thoughts would be appreciated as I am at a loss and feeling very discouraged by all of my options.