Unexpected Blood Clot Post-Surgery - A Cautionary Tale

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Longroad78
Feb 16, 2019 3:44 pm

My work week started out with a random stomach area discomfort that started like a hunger pain x10 and moved to inflaming my sore back and gave me sore joints and my water intake went from 1-2 water bottles a night to 5 a night. It took 3 days because I got used to working with pain as a normal part of my job but on the 3rd day I knew something was wrong, went to the hospital and after a CT scan the doctor came into the room and was surprised to tell me I had a bad blood clot in two areas which was in the vein coming from my intestines and spleen to my liver which in the CT scan looked completely plugged. It was a strange place for a clot according to him. I had to have the outpatient surgery to go in through the neck and leg to clean out the blockage, all good now and on blood thinners for the next 6 months and sore and weaker now with tenderness all over. I now have to slow down a little more on the job and life until I get off the thinners. According to the surgical team and doctors, they think that the area of the clot might be a complication from my stoma surgery for my ileostomy (5 months prior from ileostomy surgery). Has anyone else had a similar story that might help others prepare or be aware of some of the possible complications that can happen with any major surgery?

Puppyluv56
Feb 16, 2019 7:16 pm

Wow, glad you went to the hospital and are on the road to recovery. Never had a clot but good to know the symptoms!

Puppyluv

Posted by: HungryHamster

Hi,

Not blowing my own trumpet or anything, but I was at the healthiest I had ever been prior to getting UC symptoms. I was eating very healthy and exercising 6/7 days. I'd love to know if any lifestyle factors affect UC, but I suppose I'll have to wait until they figure out what causes it.

I've been trying to occupy myself by being in contact with friends often, but some days I am really not in the mood and find it hard to drag my mind away from what ends up being a mountain of thoughts. I suppose it's all part of the learning process and I'm sure it'll happen less with time. This website has been great so far. It's great to be able to write this sort of stuff down and chat with people that understand what's going on. For that, I thank everyone on this website.

Thanks,

Hamish.

Morning glory
Feb 16, 2019 8:07 pm

Long road, glad you went to the Dr. when you did. I have never experienced a blood clot either. I too am happy to hear you are on the road to recovery.

Best wishes,

Rebecca

dls
Feb 19, 2019 11:09 pm

Two blood clots, neither related to my surgery, they were a long time ago in 1994, a complication of an otherwise normal birth (our daughter). Next time don't be a hero. You may wind up dead. I almost did, thank you God for my loving husband. You may never have another clot, I never have, but don't be brave about anything. After all, you've successfully navigated only a foolish Doc would not take you and your complaints seriously. Hard road back, take it slow and recover fully, we never know what's around the corner.

xnine
Feb 21, 2019 1:32 pm

My CT scan picked up a small clot on my liver. It was decided to leave it. A couple of months later, severe chest pain and off to the emergency. CT showed the clot was bigger, put on heparin injections for a couple of weeks and then warfarin for 6 months. Had to put my motorcycle away because of thin blood. I felt like a pin cushion. They did not think it was related to my surgery.

 

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Puppyluv56
Feb 21, 2019 5:33 pm

X I sure hope yours goes away. Be careful while on that junk!

xnine
Feb 21, 2019 6:02 pm

That was 2015 and I bought a new bike since.

Puppyluv56
Feb 21, 2019 8:10 pm

Whew! Glad to hear that. x

warrior
Aug 02, 2019 3:57 pm
Very helpful

Blood clots are a deep mystery to everyone, including doctors. I was told that having IBD increases your chances of having a clot. I had two clots that I was lucky enough to be at the hospital for. The first one, early in the year, was treated with a blood thinner that was known to aggravate IBD. The bleeding got worse. Another clot came. Shortness of breath is a scary thing. They called the clots in my lung a saddle. This was the second time.

So they changed my medicine to Xarelto and put a filter in me in 2016. By the end of the year, the damage in my intestine was too much and needed removal.

Blood clots are indeed a worry with IBD.

lovely
Nov 21, 2019 5:08 am

I had a blood clot in my leg after my surgery. I had to go to a nursing home for about 6 weeks after my surgery because I did not have anyone to stay with me. It was lucky I did. One day, my leg started to hurt so bad I was in tears. I called the nurse and when she saw the pain I was in and felt my leg, which was very hot, she sent me to the hospital. They started giving me shots and admitted me for over a week. I was put on warfarin for a long time. I have not had a problem since. Praise the Lord.