im 35 days post surgery. My stoma is retracted quite a bit. Did anyone’s retracted stoma ever protrude? I’m having trouble with leaks but experimenting with products. Any insite into either?
Diana
Jun 14, 2019 5:42 am
MagicFlute14
Jun 14, 2019 8:49 am
My stoma retracted and I had problems with leaking at the beginning but then I found the wafer that fit me. I use convex wafers and they fit fine around the hole that is left. You gotta try. Call the different companies that offer products and request samples until you can find the right one for you.
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Posted by: w30bob
Hi gang,
I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?
I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?
Thanks,
Bob
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newnormal
Jun 14, 2019 2:27 pm
I had a retracted stoma two years after the surgery and ended up needing it revised. It was a quick easy stoma revision surgery. I'm not saying you need a revision, but if it continues to do this your surgeon might want to take a look at it. Convatec does make good products including their convex wafer, and free samples. If you have a WOCN in the area they are very helpful with this kind of thing. My stoma will still retract every once in a while but I push it back out. I definitely wouldn't do any pushing if you just had surgery though. Hope it gets better, a retracted stoma is so frustrating.
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