Question: Has anyone with an ileostomy had a hysterectomy? What should I know about the surgery and recovery?
Answer: Based on the forum discussions, here is some advice for undergoing a hysterectomy with an ileostomy:
- Consultation and Surgical Team: It is crucial to have a multidisciplinary team for the surgery. This often includes both a gynecologic surgeon and a colorectal or ostomy surgeon to manage the complexities of operating with an ileostomy.
- Surgical Approach: An open abdominal approach is generally recommended over laparoscopy to avoid potential complications with the small bowel. Reusing a previous midline incision can be beneficial.
- Pre-Operative Planning: Ensure the surgical team is experienced with ostomies. Pre-marking the abdomen for potential stoma relocation is advised.
- Second Opinions: Seek second or third opinions from top-rated centers known for handling complex gynecological cases, such as the Mayo Clinic or Cleveland Clinic.
- Pre-Operative Instructions: Avoid Fleet enemas or any bowel prep that involves inserting anything into the stoma. Clear liquids the day before surgery are typically sufficient.
- Recovery Considerations: Recovery may involve managing multiple scars, which can affect ostomy appliance adhesion. Be prepared for a potentially longer recovery period due to the complexity of the surgery.
- Patient Advocacy: It is important to advocate for your care, ensuring that all your concerns are addressed and that you are comfortable with the surgical plan.
- Emotional and Peer Support: Engaging with a community of ostomates can provide valuable support and shared experiences during recovery.
These points should help in preparing for a hysterectomy with an ileostomy, but always consult with your healthcare provider for personalized advice.
Check out these links for more information:
- Advice for Vaginal Hysterectomy with Ileostomy? (November 25, 2021)
- Hysterectomy with an Ostomy - Seeking Advice and Experiences (October 06, 2008)
- Having APR Surgery with Colostomy and Hysterectomy - Seeking Recovery Tips (March 03, 2024)
- Considering Permanent Ileostomy and Proctocolectomy - Seeking Advice (March 21, 2024)
- 3 Months Post-Op from Hartmann's Reversal & Hysterectomy - My Journey and Advice (September 29, 2023)
- Colostomy and Hysterectomy Recovery Journey (September 15, 2018)
- Opinions on raising stoma during hysterectomy? (March 01, 2018)
- Hysterectomy with Colostomy - Experiencing Pain and Seeking Advice (December 11, 2017)
- Hospital Visit for Stent Removal Post-Hysterectomy Troubles (December 06, 2011)
- Hannah's Harrowing Hysterectomy Experience and Becoming an Ostomate (December 07, 2009)
