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Vaginal hysterectomy with an ileostomy

Thu Nov 25, 2021 10:57 am
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I'd like any information, advice, referrals for doctors that did a phenomenal job with a vaginal hysterectomy, with a patient that has an ileostomy.  I have the operation set up however, my doctor is concerned with the complexity of me not having a rectum etc.  I'd appreciate any insight! May you all have a very Happy Thanksgiving! 

These are the top 5 issues ostomates face:

1. Dating and relationships
2. Concealing the pouch
3. Foods to eat and avoid
4. Losing or gaining weight
5. Pouch ballooning

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Thu Nov 25, 2021 3:05 pm

Hi wouldyou,

  When a doc is concerned......it's cause for concern.  I checked hospital ratings for those in Utah for GYN, and sorry to say the two that made the list were pretty far down. They scored something like 36 and 30 out of 100.  Not sure if you plan to travel to one of the best facilities or not, but if I were you I'd at least call the top 3 for GYN, ie, Mayo Clinic, Sloan Kettering and the Cleveland Clinic, and have a televisit with them to discuss the best path forward.  Those 3 scored 100 or a bit less.  Ratings obviously take into consideration a lot of factors, but success rate of difficult patients ranks pretty high. Hope that helps.

 

regards,

bob 

Thu Nov 25, 2021 4:01 pm


w30bob wrote:

Hi wouldyou,

  When a doc is concerned......it's cause for concern.  I checked hospital ratings for those in Utah for GYN, and sorry to say the two that made the list were pretty far down. They scored something like 36 and 30 out of 100.  Not sure if you plan to travel to one of the best facilities or not, but if I were you I'd at least call the top 3 for GYN, ie, Mayo Clinic, Sloan Kettering and the Cleveland Clinic, and have a televisit with them to discuss the best path forward.  Those 3 scored 100 or a bit less.  Ratings obviously take into consideration a lot of factors, but success rate of difficult patients ranks pretty high. Hope that helps.

 

regards,

bob 

Bob, 

You are truly a blessing to all of us ostomates. You are always so helpful and go out of your way to do research in helping others. Thank you for being such an Angel - you are greatly appreciated!

Happy Thanksgiving 

😇

Fri Nov 26, 2021 12:07 am


w30bob wrote:

Hi wouldyou,

  When a doc is concerned......it's cause for concern.  I checked hospital ratings for those in Utah for GYN, and sorry to say the two that made the list were pretty far down. They scored something like 36 and 30 out of 100.  Not sure if you plan to travel to one of the best facilities or not, but if I were you I'd at least call the top 3 for GYN, ie, Mayo Clinic, Sloan Kettering and the Cleveland Clinic, and have a televisit with them to discuss the best path forward.  Those 3 scored 100 or a bit less.  Ratings obviously take into consideration a lot of factors, but success rate of difficult patients ranks pretty high. Hope that helps.

 

regards,

bob 

Bob, 

Thank you so very much!! The research you did is going to be so helpful! I appreciate you very much! 

Axl
Fri Nov 26, 2021 3:35 am

I hope you get everything that you desire.

Axl

Fri Nov 26, 2021 6:52 am

Wouldyou....

              I have my complete hysterectomy years before my ileostomy and Barbie butt were born , but I do have some information. 
I met a woman that had her hysterectomy after her Ostomy and butt done. Although it was a difficult surgery , she had both her Ostomy surgeon and her gyn dr performing it . After the hysterectomy was complete with the assistance of the Ostomy surgeon,the Ostomy surgeon closed the internal cavity . 
mine was closed as well and not together, but we talk , both of us have no sexual disjunction. 
I agree with bob , get a team on board at a larger hospital ... 

Good luck and please keep us posted

Sat Nov 27, 2021 2:05 am

I agree with bob about a second opinion. Please keep us informed as you can, it can also help others. When is your schedule set? Best wishes

Sat Nov 27, 2021 4:44 am


Earth Angel wrote:

Bob, 

You are truly a blessing to all of us ostomates. You are always so helpful and go out of your way to do research in helping others. Thank you for being such an Angel - you are greatly appreciated!

Happy Thanksgiving 

😇

Hi EA,

  If I'm a blessing..........you guys are in trouble!  And if you keep calling me an Angel I'll have to keep my forked tail tucked in all the time. 

Seriously, thank the internet, not me.  Because people ask so many questions the internet has actually become a viable tool for finding information that takes just seconds to find, where it used to take days and lots of phone calls in years past.  You still need to apply a good dose of common sense to search results, but just about any question you have has already been asked and answered a hundred times over.  Despite its many flaws, the web is finally becoming a useful tool, as it was originally envisioned.  Go figure!

thanks,

bob

Sat Nov 27, 2021 11:37 am


w30bob wrote:

Hi EA,

  If I'm a blessing..........you guys are in trouble!  And if you keep calling me an Angel I'll have to keep my forked tail tucked in all the time. 

Seriously, thank the internet, not me.  Because people ask so many questions the internet has actually become a viable tool for finding information that takes just seconds to find, where it used to take days and lots of phone calls in years past.  You still need to apply a good dose of common sense to search results, but just about any question you have has already been asked and answered a hundred times over.  Despite its many flaws, the web is finally becoming a useful tool, as it was originally envisioned.  Go figure!

thanks,

bob

Bob,

The internet is a big help, however you're the one searching for answers for others! That is a huge help and comfort. Although I called you an Angel we all know you can be a little devil too lol! 
Thank you for being both.

😇😈

Sat Nov 27, 2021 4:07 pm

I had my hysterectomy surgery in 2015. I also have an ileostomy.  This procedure should not be done via laporoscopy. My was done by opening me up actually  using same cut from my ileostomy surgery.  You should also have a surgeon in there that does ileostomy surgery  because in the event your small intestine gets preferated which it can do to the fact its floating around . 

So they marked my stomach in the event they had to relocate ostomy.  I didn't need another surgeon in OR because  my doctor is an oncologist gyn  and

performs  ostomy on patients that have cancer.

Sat Nov 27, 2021 7:11 pm


Earth Angel wrote:

Bob,

The internet is a big help, however you're the one searching for answers for others! That is a huge help and comfort. Although I called you an Angel we all know you can be a little devil too lol! 
Thank you for being both.

😇😈

It has been said bob is our resident Dr on this site.

Sun Nov 28, 2021 3:34 pm


DreamAngel 10 wrote:

I had my hysterectomy surgery in 2015. I also have an ileostomy.  This procedure should not be done via laporoscopy. My was done by opening me up actually  using same cut from my ileostomy surgery.  You should also have a surgeon in there that does ileostomy surgery  because in the event your small intestine gets preferated which it can do to the fact its floating around . 

So they marked my stomach in the event they had to relocate ostomy.  I didn't need another surgeon in OR because  my doctor is an oncologist gyn  and

performs  ostomy on patients that have cancer.

Thank you so much! 

Sun Nov 28, 2021 3:35 pm


lovely wrote:

I agree with bob about a second opinion. Please keep us informed as you can, it can also help others. When is your schedule set? Best wishes

It's dec 22. However, I may wait and do more research.  Thank you so much for your kind words! 

Sun Jan 09, 2022 1:39 pm

I was given a totally hysterectomy while my main surgery was my bladder removal where I was given my urostomy. I researched the very BEST doctors after I was given a doctor I researched and was not impressed with and would not settle for. Remember... THEY WORK FOR YOU! So I now have a five star best doctor I could of asked for in my area! And I had completel trust in him and his abilities. You can say no to a doctor... it's your life. So that is what I did and how I did it!

best wishes

Sun Jan 09, 2022 2:23 pm

Hi, When we start this journey there are so many questions we never ask at the beginning of this conveyer belt of hospital appointments & various consultants if you having several surgeons working on you at the same time if it's a major operation. It's like getting caught in the headlamps as a rabbit & not knowing which way to turn? You automatically think you have to go with the first surgeon/consultant you see? But you do not even the hospital in UK you can choose to find the right surgeon? I chose my surgeon to begin with as she was well recommended in the gastrointestinal department but knowing what I know now she gambled on fitting my colostomy bag first then leaving my  tumour size of an orange in my rectum & 3 months later I had radiation & chemo orally for one month consecutively then had to wait 2 months for a ct scan as things are foggy for that time then found out my rectal tumour had advanced locally to my semicle vesicles,prostrate & bladder! So instead of shrinking my tumour it grew even bigger & further & in the 3nd this surgeon who was a big fish in a little pond had to admit defeat & referr my to a top surgeon up London at St Mary's hospital who specialised in radical surgery who travels the globe operating on people & is an honoury president & proffessor at the Mayo Clinic in US. It took from September 2018 until May 2019 to get my rectal tumour operated on if I had been referred in September to this surgeon which I believe I should of I would still have my bladder which is a bigger problem than my colostomy bag as it's like your plumbing without a stop cock it's relentless. Also my operation would of been about 10 hours instead of 25! I wish I knew of this surgeon to begin with rather than a chancer! Good luck 

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