I'm getting conflicting info regarding barrier sprays. I had my first couple of colostomy bag leaks this past week. The first was after an appointment where the ostomy nurse decided to try a different/convex product because of the inflammation around my ostomy. The nurse used stoma powder on the edge where there was still some separation from the surgery, then barrier spray, beneath a convex barrier ring and a flat plastic flange. The next day I had my first leak beneath the seal and under the edge. It was disturbing and inconvenient, though luckily I was home and had all my gear in the bathroom when I found it was leaking.
I changed the whole set-up but discovered the skin was now irritated and raw. I called Hollister to ask why it might have leaked and was told not to use barrier spray with the Cera-ring, which I had never been told by the ostomy team. I started to have painful stinging with even regular activity, as if the bag was pulling on my skin. When I changed the set-up three days later, I had more redness around the ostomy, so I contacted an ostomy nurse who said to try an antifungal powder with barrier spray next time I changed the flange.
There were now ulcerations on the skin around the stoma, very painful stinging and stabbing sensations, so I tried the stoma powder and antifungal powder with barrier spray, but two days later experienced another edge leak that was both painful and inconvenient. So I went back to the Cera-ring, stoma powder without barrier spray.
I finally am going in for my appointment with the ostomy care department this morning to see what it looks like after all this, and I'm super frustrated with my ostomy nurse and wish I could see someone else, but they keep scheduling me with her.
What is your experience with barrier spray vs. no barrier spray regarding leaks? What about ulcerated tissue? I'm tired of being in pain and also would like to move confidently in my life without having leaks.



