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Sunny1978

What's your stoma's name? Share your creative names!

Jun 15, 2016 - Sep 04, 2023
It is my understanding that quite a few people have given their stoma a name.
I have been thinking of that off and on since the time of my colostomy (Jan. 2015). I finally settled on one:
Krakatoa, like the volcano. It either spews output like crazy or is dormant for a long time, like up to 4-5 days at a time (even with many laxatives, etc).
How about you?

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110 replies | 19943 views
Abefroman1969

Anxiety about pouch change - Seeking advice and support

Mar 10, 2022 - Mar 13, 2023
I've had great luck with the last two pouches I've applied. So much so, I had serious anxiety about changing the pouch this time. Well, last night I sprung a very small manageable leak, so my decision has been made for me.
I'll be changing out the pouch this morning after a shower, going horizontal this time so I can try out the first ostomy belt that has arrived. I got it on eBay and have had ...
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88 replies | 3276 views
Bettyjoe

Colostomy irrigation not working, need suggestions

Sep 11, 2016 - Nov 08, 2019
Hello, I started the irrigation process early this morning. I had everything that I needed with me, and for one strange reason or another, it did not respond. I placed the cone in my stoma, and lo and behold, nothing. What did happen was that the water would filter out while the cone was in and fell into the sleeve, but not all of it, 1.5 liters. I am hoping that this model will work for me. I ...
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76 replies | 15590 views
Beth22

Best shaving options for sensitive skin around stoma?

May 12, 2022 - Jul 30, 2022
I need to shave around my stoma but not sure what to use? I read an electric razor and the one I got I tested it on the opposite side of my stomach and it's pulled my hair .. my stoma nurse had said I could use a regular razor but I am not comfortable with that and I am prone to razor burn and have sensitive skin... What does everyone do / use? Would love any advice and suggestions please.

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65 replies | 4279 views
julianatheory151

Rinsing ileostomy bag: necessary or not?

Jan 14, 2018 - Sep 14, 2019
I've been given mixed information as far as rinsing out my ileostomy bag between changes. Yay or nay?
I had a lot of issues with leaking barriers early on, and one of the suggestions was to not rinse inside the bag. But it seems like if the barrier holds up with liquid output, water should be fine?

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64 replies | 24400 views
iMacG5

When to change: Frequency and benefits

Jun 24, 2016 - Sep 13, 2016
It seems like we know everything there is to know about our stomas, the appliance and all that needs to be done and when. Yet it wasn't that long ago that we didn't know the difference, or if there was one, between barriers, barrier rings, barrier film or spray, wafer, base plate, etc. I mention this because there may be questions asked by newer folks and we (or I) need to slow down before thr ...
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61 replies | 12773 views
Cecille

Ostomy bag usage in the UK: Frequency and cost concerns

Feb 01, 2015 - Jan 11, 2019
I am asking this question because of the recent phenomenon of being told I am using too many bags by my GP! I suspect it's because of the costs and related to the recent cutbacks due to the austerity thing! See other posts on this site on the subject of people not getting their bags on time.

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61 replies | 22232 views
krkb01

Naked-shower

Jun 01, 2023 - Aug 03, 2023
So how long after y'all got your ileostomy, did you decide to take a naked shower? Lol, by that I mean, without the device on. I am just about 4 weeks post-surgery, and I still feel like it would be very uncomfortable in the shower naked.

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59 replies | 1806 views
past member

Share Your Ostomy Tips! Helpful advice for daily life with an ostomy.

Apr 18, 2009 - Aug 23, 2022
I haven't seen any threads titled Tips, so I'm starting my own! I have a few tips that can make daily life with an ostomy a bit easier. If you have any, then post them. I'd really like to keep this thread strictly for tips so newcomers can find the information they need.
1. Carry an extra tailpiece clip with you at all times. This is in case you drop one while you're in the bathroom or if the ...
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58 replies | 59553 views
socalileo

Unique placement of ileostomy: How to empty pouches effectively?

Sep 13, 2011 - Jun 18, 2013
I have an issue with emptying my pouch at home. I have to stand and straddle the toilet bowl to empty my pouch. This is not doing my back any good.
When I am out in a public bathroom, I can sit far enough back on the toilet seat that I can empty while sitting down. I can't do that at home as the toilet tank gets in the way.
My ileostomy is located in an odd place (I have been told). It is loca ...
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58 replies | 28452 views
Frenchie55

Preventing Nighttime Mishaps for a Better Morning

Mar 04, 2011 - Jul 05, 2018
Hi,
Many of you out there having mishaps through the night? Sure spoils your waking up. It doesn't encourage me to look for a relationship with this happening.
Janice

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57 replies | 29336 views
Newbie28607

Tips for Managing Output During Ileostomy Pouch Changes

Apr 09, 2022 - Apr 15, 2023
Hi - I got my ileostomy 3/7/2022, so I'm about a month out from surgery. I was re-hospitalized with quite an infection, and so now that I'm home again I'm finally beginning to wrap my head around the day to day with the pouch.
My output is not extremely liquid like it was at first, but it's also not very thick. I think this may be the case with ileostomies in general. What are your experiences ...
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53 replies | 3169 views
w30bob

Running Out of Ostomy Supplies During a Crisis

Jul 08, 2022 - Nov 07, 2023
Howdy gang,
So the whole COVID pandemic thing got me thinking. With all the supply shortages, etc... what exactly would I do if I called to order my 3 months' supply of ostomy products and they told me they had none... and didn't know when they would have some? Have you considered what you'd do? I know folks like Bill make their own supplies, but the vast majority of us would be up shit's cree ...
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53 replies | 2646 views
dmo101

Clear Ostomy Bag - Why the Change?

Jan 24, 2023 - May 29, 2023
I have worn an opaque bag for 30+ years.
Having issues with my old Convatec bag/flange leaking due to me gaining some extra poundage at the waistline. Convatec reps sent me some alternative appliances. The bags are clear and you can see your output. WHY clear? I hate the clear bags!!! I have NEVER cared to look at my output while it was in the ostomy bag. I think it's a BIG turn off seeing a b ...
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52 replies | 1955 views
gairdinspreagtha

Ostomy Irritation: Seeking Advice and Support

Dec 05, 2022 - Dec 30, 2022
Last Monday I changed my appliance. Wednesday had a blowout. I noticed that day that my scar at the side of my ostomy looked irritated. I was a little afraid I had ripped it again. Thursday I had another blowout. This time I noticed a red ring around my ostomy. At the time I couldn't tell if the red ring would be under my barrier ring or just outside it.
The last few days I've felt itchy and o ...
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50 replies | 1924 views
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