Vitamins and Supplements discussions

b 4 life

B12 Injection: Ostomates' Experiences and Benefits?

May 23, 2012 - Jun 02, 2012

Just wondering if many ostomates have the B12 injection, reasons for having it, and benefits from it.

8 replies | 5787 views

petunia

Vitamin Absorption without Colon: Hair Loss and Nutrient Deficiency

Jul 19, 2018 - Jul 25, 2018

I have had an ileostomy for 12 years. My question is this. Recently, I started to lose my hair. It is getting very thin. I am on some very good vitamins and omegas.
I have a friend on the same vitamins as I am on who has started to get new hair growth. I have not. She does have a colon. I do not have a colon anymore. I know my vitamins are not
being absorbed like they should if I would have a ...

6 replies | 3307 views

Calico

Question about Crohn's meds after ileostomy surgery

Jul 25, 2013 - Aug 07, 2013

I was just wondering how many people who have Crohn's disease with an ileostomy are on preventative medications, i.e. Humira, Simzia, Remicade. And how soon after your ostomy surgery did your GI doctor put you on these meds, or were you always on them?
Before my surgery, I had been on all the typical meds over a 10-year period, starting with oral meds, then 3 years of Remicade, then a few mont ...

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19 replies | 9379 views

cwr38001

Advice for low energy with ileostomy - vitamins or blood work?

May 20, 2022 - Jun 15, 2022

I've had my ileostomy (permanent) for two years and I did well until several months ago. I have no energy to do normal stuff like I always do. Of course, since I am 70, I know
I've slowed down due to age but dang. Do y'all take vitamins, or potassium...should I go get some blood work? All I want to do some days is sleep. Thanks for any input.

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16 replies | 1315 views

sunflowers

Best liquid vitamins for ileostomy?

Mar 29, 2022 - Jul 26, 2022

Just wondering if anyone takes vitamins? I have an ileostomy and there are a lot of dietary restrictions. I read that it is best to take liquid vitamins with my ostomy type. Please respond with anything you might know on this subject? Thank you

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16 replies | 1920 views

vdahl

Probiotics for Ileostomies - Best Options?

May 25, 2017 - Jul 07, 2019

I realize a great deal of digestion and absorption of nutrients takes place in the small intestine. There is a lot of information about being careful with time-released and coated medications, so it only makes sense that some of the nutrients from foods are sacrificed as well. I've been trying to determine what probiotic might work best with an ileostomy. Some sound like they're more like a la ...

15 replies | 36710 views

Oceanblue

Life Expectancy for Ostomates

Apr 23, 2013 - Aug 30, 2013

I was wondering if anyone knows if our life is decreased in any way by not having a colon. Obviously, we are living longer due to life-saving surgery. I was just wondering if ostomates are missing out on vitamins/minerals that may have a negative effect on our long-term health.
I know I won't be dying from colon cancer.

15 replies | 29714 views

zanzi1

Ileostomy and Shortness of Breath: Seeking Cause and Solution

Mar 08, 2019 - Jul 25, 2022

Does anyone with an ileostomy have shortness of breath? And if you do, do you know the cause and solution?
Also, no energy. Thanks.

14 replies | 2866 views

2marilyn2

Ileostomy causing magnesium deficiency - seeking advice

Dec 17, 2019 - Jan 26, 2020

Hi all,
I've had an ileostomy now for nearly two years and because of high output, I have an ongoing problem with low magnesium! I spent last year, once a week every week at the hospital having a day-long magnesium infusion which was starting to play with my head, slowly bringing down my mental state! For the first part of this year, it seemed to settle but in June I suffered a blockage and si ...

14 replies | 5568 views

past member

Probiotics: Reducing Inflammation & Improving Auto-Immune Conditions

Aug 23, 2016 - Aug 30, 2017

Everyone's different, but many people with almost all the autoimmune (inflammatory) conditions (even MDs) are posting that probiotics (good bacteria) have helped many of their symptoms. Inflammation is usually a sign of infection or allergy. Ulcers are caused by bacteria. Many with Crohn's have ulcers throughout their systems. Ulcer is in the name 'UC'. Bad bacteria can get through the gut, in ...

13 replies | 6771 views

Feb9HH

Seeking Blog on Healthy Eating & Vitamins for Ileostomy Patients

Apr 22, 2022 - May 19, 2022

I am interested in finding a blog about eating healthy, vitamins, for people with an ileostomy. I would like to eventually make the move off anxiety meds and dig deeper into healthy eating. We have some challenges with not being able to take time-released, coated pills. Also, having an ileostomy and the challenge of knowing what vitamins we need that we may be falling short of.
I would hope to ...

12 replies | 1375 views

IGGIE

B12 Supplement After Intestinal Surgery

Sep 19, 2023 - Sep 29, 2023

I have been meaning to mention this for some time, but my surgeon told me after my operation that when you lose the last section of your ileus or small intestine, you have to take supplement B12 because it's the last part of the small intestine that absorbs B12 and you need it. Regards, IGGIE

11 replies | 626 views

Deziner

Maximizing Nutrient Absorption: Liquid Vitamins & Supplements for Ileostomates

Jun 19, 2021 - Nov 16, 2022

Because most of us are ileostomates, we aren't able to fully absorb nutrients from our diets. Same goes with vitamins and supplements in pill form like tablets/capsules. When available, I always choose the liquid form. They are much easier or are completely absorbed than ones in solid pill form.
Absorption depends on how long our small intestines are after surgery or more than one surgery.
I h ...

11 replies | 3631 views

merryberry

Seeking advice on malabsorption and ileostomy complications

Feb 06, 2013 - Feb 13, 2013

I have had my ileostomy for 28 years and have just started looking for answers to some questions that I cannot find anywhere else. I don't know what took me so long. I suffer from malabsorption, which means I am chronically anemic, fatigued, low in some essential elements such as protein and vitamin B12. The medical establishment's answers are to give me injections and infusions and tell me to ...

10 replies | 6452 views

Killerd222

Seeking Advice: Persistent Dizziness, Tingling, and Ringing Post-Ileostomy

Sep 15, 2018 - Feb 23, 2023

Hi all,
I am 3 months post ileostomy and since the 1 month mark I've experienced daily dizziness, tingling in my hands, and ringing in my ears. These symptoms occur daily, at a constant level. I've seen my home nurse, family doc, ENT, Functional Med, and Neurologist trying to find an answer. I also see a therapist, chiropractor, do therapy, vestibular therapy, and acupuncture - all of this to ...

10 replies | 2850 views