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Dave_Canada

Countdown to Ileostomy Reversal: What to Expect Post-Op?

Jan 17, 2012 - Feb 05, 2024
Hello everyone.
I just found and joined this site a few days ago. I wish I had discovered it sooner. So many helpful tips and hints that even the hospitals don't seem to know.
Anyway, with that being said, I begin the countdown to my ileostomy reversal.
Five weeks from today.
I know that sounds like it's far away, but in my head, it's coming fast and I have no idea what to expect.
A brief his ...
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234 replies | 79379 views
hockeymom5331

Successful Ostomy Reversal - Progress, Hope, and Life After Surgery

Jun 08, 2013 - Mar 24, 2022
I am almost 3 weeks since reversal date and all has gone well. Haven't needed pain meds for 3 days now and am sleeping on my sides again, so all that is big progress for me. The large gaping hole where my stoma was is closing up more each day. I have times where I am running to the bathroom to get there on time, but not always. I mostly feel in control but am comforted by being able to have a ...
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85 replies | 45516 views
pnwgirl1963

Recovering from Colostomy: Seeking Hope & Support

Mar 27, 2016 - Jun 19, 2023
Hi - Eight days ago, I had 15 inches of my colon removed and a colostomy placed due to severe diverticulitis with abscesses. It appears I've had this for a long time and it went undiagnosed, with my first bout in August of 2015. I almost died, they tell me.
Now I have this bag, and I'm overwhelmed.
Aside from being exhausted from major surgery, every twinge makes me anxious.
Has there been any ...
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81 replies | 17827 views
Cat Went

When did you get your ostomy?

May 06, 2022 - Jan 14, 2023
When did everyone get their ostomy? I've had mine since November 2019

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66 replies | 2958 views
drfields24

Rectum Removal Surgery: Hospital Stay & Recovery Experiences?

Apr 24, 2018 - Nov 08, 2019
Well hello everyone.
Needs your prayers. Just saw my surgeon today and they decided to remove my rectum.... Has anyone had this done? How long was the hospital stay and recovery?

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65 replies | 9500 views
Dogen's bag

Hartmann Reversal: Laparoscopic or Open?

Jul 29, 2023 - Nov 06, 2023
Going in for Hartmann reversal, my surgeon would like to do it laparoscopically but apparently I have a "narrow pelvis" so she may have to do the incision again. Being a planned surgery, I thought I would be less nervous but my mind is racing with everything that could go wrong so thought to post here to alleviate a bit of that, :-)
Funny how writing and posting can be a relief.
That is all. I ...
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57 replies | 1840 views
redtop

Terrified of Upcoming Surgery - Need Sympathy and Comfort

Jul 14, 2015 - Jul 09, 2022
Hi.. My name is Sandy.. I'm 58, was diagnosed with rectal cancer on Feb 4..... I did the chemo, that was the easy part.... Then the radiation... Whew... Nobody told me about all the PAIN.... And so now, I'm looking at surgery on Friday, July 17, to reconstruct and to add a colostomy bag... Which will be with me the rest of my life.... And I don't mind saying, I'M SCARED.... I worry about what ...
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57 replies | 13718 views
RaenotRay

Bowel Prep with Ostomy: Tips & Laughs for Surgery Recovery!

Apr 14, 2022 - Apr 20, 2022
Hello friends,
I'm sitting in the calm of a sleeping house all prepped and ready for surgery. It's currently 1am here in Washington state. We're a tad behind the rest of the world.
I'm not sure if a bowel prep is better with or without an ostomy. I had the grand pleasure of putting 2 liters of soapy (go figure ‍) water into my stoma. I have a loop ileostomy, so there's the output portion, an ...
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52 replies | 3039 views
Ruppy08

Seeking Advice: Elective Colectomy/Ileostomy Experiences

Jun 26, 2019 - May 29, 2023
Hi everyone! My name is Nicole. I am 30 years old. I was diagnosed with UC when I was 16. I have been struggling this entire time, switching medication and diets, trying to find something that will work. And unfortunately, nothing has helped. I am currently getting Entyvio infusions every 4 weeks, taking Lialda every morning, 9 fiber pills a day, and sometimes maxing out at 8 Imodiums a day. I ...
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50 replies | 6086 views
Lifechange

Colostomy Reversal and Hernia: Any Advice?

Feb 09, 2017 - Mar 28, 2018
Hi there.
It's been just over 12 months since my colostomy operation due to diverticulitis and peritonitis and now I am waiting to have a reversal. I have developed a hernia behind my stoma (it looks like a perky boob with pursed lips LOL and have another one on the right hand side which the doc tells me is an incisional hernia. I now have what I call my front bum LOL. Hopefully I will have th ...
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50 replies | 9022 views
Bill

A loner with a stoma

Dec 02, 2013 - Dec 19, 2016
A LONER WITH A STOMA.

Laughter simply drained from me
after I gained my ostomy.
It turned out just as I had feared
as all my friends just disappeared.

I don’t know where or why they went
after all the time we spent.
No longer seen around with me
and that’s down to my ostomy.

I was bereft within myself
for feeling left upon the shelf.
And I was lonely ...
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49 replies | 21218 views
catttters

Seeking advice on sex life after ileostomy surgery

Feb 11, 2014 - Feb 22, 2017
Hello, I'm a new ileostomy patient. I'm a bit frustrated about the death of my sex life. I'm a very happily married man with a beautiful daughter. Since my operation, I have been told in very clear terms that there is going to be no sex for the duration of my bag. Luckily, it's only 6 months until I have my reversal, but when you add the 2 months prior, it seems like a life sentence. I underst ...
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49 replies | 38592 views
past member

Can we eat salad? Need ideas!

Dec 28, 2010 - Aug 18, 2018
My stoma nurse said we can't eat anything raw, nuts, seeds, lettuce, tomatoes, or fruit, only bananas...
I've just read on a post that someone ate a salad sandwich. I would love to eat salad.
ANY IDEAS.

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48 replies | 57667 views
Beth22

Experiences with Barbie butt revision?

Jul 27, 2022 - Dec 09, 2022
I went to the doctor yesterday. My stoma is getting revised. Praise God. The doctor also brought up the option of getting a Barbie butt due to my pelvic floor dysplasia. So, question for those that have a Barbie butt, how has it been with getting it done?

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47 replies | 3027 views
Rider1000rr

Physical Activities After Ostomy Surgery: Roller Coasters & Weightlifting?

Apr 26, 2017 - Nov 03, 2018
Can you ride roller coasters and lift weights after ostomy surgery?

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47 replies | 11421 views
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