Ostomy Discussion - Ostomy Questions and Answers

I am a 37 year old, single mom of 3 and I am a colorectal cancer survivor going on 3 years now. I am dating and find it very difficult and stressful to try to tell someone I want to be intimate with, that I have an ostomy.  How do you tell someone? I would also like to know how can I  hide or keep my bag from getting in the way during intimacy. I am so worried that I will never find someone...

I am almost 3 weeks since reversal date and all has gone well.  Haven't needed pain meds for 3 days now and am sleeping on my sides again so all that is big progress for me.  The large gaping hole where my stoma was is closing up more each day.  I have times where I am running to the bathroom to get there on time, but not always.  I mostly feel in control but am comforted by being able ...

When did everyone get their ostomy? I’ve had mine since November 2019

Yo Gang!

  Ok, I've had enough.  Since joining this site this past summer (or maybe it was the spring), I've read with my own two eyes at least 3 or 4 ostomates claim they've had INTIMATE sexual relations (with a fellow human being) and their partner was totally unaware of their ostomy.  SAY WHAT???  So I need to know what the hell you're talking about.  Unless you're talking about a humm...

I am asking this question because of the recent phenomenon of being told I am using too many bags by my GP!  I suspect it's beause of the costs and related to the recent cutbacks due to the austerity thing! See other posts on this site on the subject of people not getting their bags on time.

No wonder people have such misinfomed and disrespectful attitudes towards people with ostomies, and worsened by ostomates who use the term, as well. 

I find the use of the word "bag" to describe an ostomy pouch, demeaning and disrespectful. 

To me, its my pouch, part of the appliance I wear, a result of life saving surgery from a debilitating and killer illness,  and deserving of more resp...

I haven't seen any threads titled Tips, so I'm starting my own! I have a few tips that can make daily life with an ostomy a bit easier. If you have any, then post them. I'd really like to keep this thread strictly for tips so newcomers can find the information they need.


1. Carry and extra tailpiece clip with you at all times. This is in case you drop one while you're in the bathroom or if th...

It has been a LONG time since I was last involved in the dating scene as my marriage of twenty years just imploded. I recently began talking to a young man online who asked for my phone number. I thought that this was probably the right time to reveal the truth about my cancer and ileostomy. He dropped me like a hot potato. Not a word. No phone call, no email, nothing.  Even though it is the r...

After six weeks of satisfying him orally, i decided that i would attempt a different way of getting intimate.  I taped up my bag and got naked.  Well, this ended badly.  I am still not attracted to my body, and not sure what the hell i was thinking.  it was very depressing.  He's a boob guy and i have a feeling that me not having what i used to turned him off.  He wont admit that because ...

Howdy Gang,

 So the whole COVID pandemic thing got me thinking.  With all the supply shortages, etc.........what exactly would I do if I called to order my 3 months supply of ostomy products and they told me they had none.....and didn't know when they would have some?  Have you considered what you'd do?  I know folks like Bill make their own supplies, but the vast majority of us would be u...

Tips for Preventing Ostomy Leaks

Clean skin well with soap & water and dry well *** no lotion or lotion soap around Stoma area!!!!!!!!!!!!!!!!!!!!!!!!!!! DO NOT! USE SKIN PREP!!!!!The prep prevents the barrier and ring or paste to meld with the skin it use to be recommended but not with todays products Cut the barrier & peel off plastic on barrier and let sit a few minutes before applying ...

I inherited a neuro disorder at 20 and spent the next 5 years having 15 BMs/day & constantly smelling like crap. As a result I had no personal life and spent most of my time working from home. Bowels aside I was very fit & healthy, comfortable and extremely productive in a skilled high-tech job.

In 2013 I got a colostomy / ectomy. Since then eating causes crippling bloating that leaves me w...

i really want a japanese ostomy sink/toilet! 

how does someone in the u.s. get one of those? i tried googling it a thousand ways but no joy. 

daggone it, i want one of those sinks.  do any of y'all have one?  or advice on how to get one?

Hello everyone....I am new to all this(2weeks) and was wondering how everyone keeps their wafer dry while showering. I'm sure this has been asked a bunch...any tips or tricks would be appreciated.

Thanks

I know this topic has been posted many times...but does anybody have any terrible dating stories about trying to date with a ostomy? I have read about the ones where people don't mind etc..but I feel like those are few any far between. I just wanna know that I am not alone in feeling like I will never meet anyone.  I had numerous hospitalizations over the years and have not dated due to my ill...

I am in a bit of a conundrum, and I signed up on this site to come ask this question, wondering if maybe all of you on the site could have a suggestion.

 

I have a friend who has an ostomy and bag. I visit her often, as I am really only one of the friends she has. She got an infection from a bug bit and ended up losing a large part of her intestines as a result, and of course was given the o...

I am 28 and gay with an ostomy bag. I feel like the only one, even though I know there must be others, I don't know any. I am concerned that I won't be able to find anyone who will date me because I have a bag. The possibility of ending up alone scares and depresses me. I truly want a partner and family one day and I just feel that people may discount what I have to offer simply because of my o...

Hi again, another simple question.  With Stomy approaching his first birthday (november 9), I find myslef with a plethora of supplies.  Where do I store them?  Although I take anything I can't use to my Ostomy group, I do use my monthly allowance--and never reach the limit.  Nevertheles, I have a bureau full of supplies, and half my linen closet.  This stuff is taking over my knitting stas...

Hi Gang,

  I've had my ostomy 5 years this past September and I still don't consider it "part of me" to the point where I don't give it much thought (like my hands and feet, etc). Does it ever just become "part of you" such that it's not on your mind 24/7......or is this "the new normal"? If it does become part of you then how long does it take? I realize that's a complicated question, as it ...

Hi Gang,

  This is pure laziness on my account, but just wondering if anyone makes shitbags in colors?  Yeah, I could use a bag cover or something, but with the frequency I empty my bag anything additional that I have to unzip, roll up or even hold up......is a pain in my beautifully curved buttox.  So I was wondering if any of the suppliers (or 3rd party companies) make colored ostomy bags...

I am 72 yrs, have my ostomy since aug. 2012, things had been fine uptil now.  I am having issue with some blockage,need some advice or pointers.  thank you joe

Hi Gang,

  Ok, maybe that's not the question.  Bear with me......  So I change my barrier/bag, which is a Hollister 2-piece, every other day.  Obviously, I go thru supplies pretty quickly.  And they're expensive.  Yes, my insurance bears the brunt of that, but only after I've met my deductible.....so ordering things after the New Year gets pretty deep in my pockets.  Now I'd never thoug...

Does any one else feel that way

OK, now that I am learning to use all this stuff, I am keenly interested in what you carry and how you carry it.  I am small woman who likes a smallish handbag. When I carry a large handbag, sachel or tote I look like I'm hauling luggage. Again: what do you carry, how do you carry it?  I would like to hear from men as well as woman as they usually only have pockets, unless they carry a man-pu...

I got diagnosed with a very tiny spot of cancer in my low colon in early march. Had surgery two weeks later. I begged the doctors no bag please!! I can't deal with it. I already have enough on my shoulders without the headaches of a total life change so to speak..they said they will do their best no promises or guarantee not to get one..I prayed so hard for days for God to not let me have one.....

Not sure if this has been tried before but here is a simple and very cheap way to eliminate odor from pouch. Buy a small bottle of eucalyptus oil (it usually comes with a drop dispenser on the top). All you need to do is add around 5 or more drops into the bag after emptying. I find this to be very effective and it also leaves a nice smell in the bathroom. Your pouch will also have a pleasant s...

Before my ostomy issues showed up I expected to live near to my parent's ages when they died. They were in their upper nineties. If I do not have any new ostomy issues should my expectations remain the same? Insurance Companies are saying that people are going to live longer. From what I see on the news I am not sure. Entertainers, politicians, sport stars and other VIP type people that make th...

Hi Gang,

  Each time I read the replies to the topics on here I better understand what folks are going thru, ie, can't sleep, leaks, skin issues, etc, etc, etc, and I keep thinking back to the days before I was given my ostomy.  My docs really didn't say much at all about what an ostomy would be like, and I wasn't asking.  They mentioned it was always a possibility if they ran into issues...

I am very adventurous and love trying new things as it's the only thing left that uses the words ' I have Guts', but with this issue I'm not that gutsy ! 
I'm a high constant output ileostomy gal. I use as my sidekick a Hollister Cera Premium convex holster which has clips on the sides. I use the 1 inch wide belt to clip on  . Do I need to wear this belt ? I'm afraid the entire appliance will ...

I have a date this weekend and am not sure how to bring up the subject of my ostomy.  I don't think anything is going to happen, but it was a fairly important event in my life....and something that I should probably tell her about.

I'm not secretive about it and not ashamed of it by any means...but I also tend to be a little flippant..."oh yeah, four years ago i almost died.  Spent a month...

Hi Folks,

  Just wondering what it's like for everyone else with an ostomy, in terms of activities/hobbies/etc that you can no longer enjoy because of your ostomy.  I realize the type of ostomy and underlying condition(s) dicatate your answer, but I'd still like to know.  For me it's not so much the ostomy itself that curtails many activities I used to do pre-ostomy, it's the fact that I'm...

I recently had a colostomy bag (Nov 2012). I lost a lot of  weight (45 lbs). I'm now trying to put on some weight and have a huge appetite. I have a lot of out put in my bag which causes an oder. Any  suggestions on how to reduce the oder when i empty my bag? I'm using the one piece bag with the Velcro at the end. Thanks in advance for your responses.

Hi all,

So I have another question, not really related to food specifically, but about alcohol, which I figured could be included in diet. I have very rarely had anything to drink when I have had my ileostomies because I was worried about nausea and accidentally getting to drunk and forgetting to check my bag (so it leaks.) What is any of your guys experience with alcohol in relation to this...

I am a widow--i have been talking to a fantastick guy online he is perfect, he wants to meet me--do I tell him I have an ileostomy before or after we meet face to face??I do not want o loose him at this point.Could some men tell me how they would like to learn this before or after face to face??Thanks

after the spectacularly deep stoma revision, i have had the opportunity to try all the products out there and have much feedback about them all.  the lack of products that deal with the particular pouching issues i'm having aside, the bulk of them is just not "just right" for my connoisseur tastes in poopwear. 

as a poopwear connoisseur, you'd think i'd like the coloplast mio line.  the fin...

I finally found a pouch and flange I felt comfortable with. After a year, I experienced leakage from the filter in bags from at least 4 different boxes with the same Lot#.  I called the company and they said they had not received any calls about leaking at the filter.  I found that so hard to believe.  They did send me replacement boxes, but amazingly to me, and of course them, some of t...

This is for the outdoorsy ostomates - anyone have any good wilderness camping tips or kayak tips to share with me?  I just got an ileostomy 6 months ago, and before surgery I went on kayak trips and went tenting deep in the woods for days at a time - no bathrooms, no electricity.  I don't intend to let having a stoma curb any of these activities, but I want to be prepared and hear a little ...

Hi,

 

I expect to travel for my work, soon, from California to Europe, Egypt, Saudi Arabia, Guam, Japan and South Korea.

 

I will fill up a regular bag on those long flights and can't see how I and my helper can fit into an airline bathroom without making a mess.

 

Any ideas?

 

Thanks,

Rod

 

 

Hi I am checking if there is anyone who drinks alochol after having a stoma... before my Ostomy I used to drink alochol all the time geting drunk every weekend... after my operation I stopped drinking all together, but on the odd occasion I have a wiskey or 2 and it doesnot effort me, but I am just worryed if I should be or not.....thanks

Sry this is so long but yall are the only ones i have to talk about this too. I've had my Loop sigmoid Colostomy since 642018. I had a bit of mucus with my Ileostomy 6 years ago, so i understand with a loop some stuff can pass to the rectum. Had a scare earlier, & i hope not TMI, but im worried! I had a "lot" of mucus & stool along with undigested food pass 2 times and both times it was a LOT!!...

I have an ileostomy and have developed a fistula where the skin of my abdomen meets my stoma. I'm going to be having surgery to fix the fistula. I have had two open abdominal surgeries in the last two years (colon cancer patient). My colorectal surgeon is going to try and fix it laparoscopically, but it may have to be open. I was surprised by my doctor feeling it needed to be fixed now and forg...

what clothes do men wear

What would your dream ostomy bag be like, but within confines of possibilities?

 

Mine would be....clear around my stoma, opaque halfway down and all the way to the bottom. So no one sees my feces but I can keep an eye on my stoma. Also one with the Velcro tick and roll closure but that somehow doesn't end up getting poo on my hands or the end of the spout part/splashing to places. Also one ...

Hello everyone, I have been using the sensura Mio bag and I've noticed of late that I'm not getting anymore than 3 days use. Does anybody have better success with another style bag. Also does anybody shower with the bag on? Thanks so much.

I've had my illiostomy since April of this year.Had a few blowouts here at home,but I don't want to venture too far from home because of the fear of it happening away from home. Have you fellow ostomates had problems in public, what do you do?I'm tired of being a "prisoner" in my own house!!!!  HELP!!

Hope someone can help. Had a colostomy last May. Went in for reversal operation Oct. 5th. OP did not go well and required two emergency operations during the 6 weeks I was hospitalized. Last op was 7 weeks ago. I suffer from daily diarrhea and actually lose control about every other day. Dr. ordered stool tests for c. diff which I have had and know this is not c. diff. What is going on?

Thank...

I just had a new patch made and had it sewn on my jacket,it says   OSTOMY RIDERS
Im hopeing to start a nationwide awareness that just because we have a bag we cant still do the things we like.I'll be out there advertising everyday.I know of a few riders here on this site and Im sure it will raise awareness.Theres no dues Im sure we have already paid with our lives.
takecare
bikerboy greg

hi all, ive been reading through this sites many useful posts and im still unclear as to the use, pro's and con's of the ostomy belt.

ive been to many websites and there are dozens to choose from, Ive been nearly six weeks post op for my stoma and am starting to get out more and with a view to returning to work in a month or so.  the advice given is helpful but as an osto 'noob' im still unc...

what are the advantages/disadvantages of using a belt for my stoma bag? I had my colostomy 2 months ago and am searching for best solutions for comfort, changing etc.

I haven't flown since I got my ileostomy. I used to love to fly, so easy and convenient. Now I am terrified. I have heard horror stories about going through TSA checkpoints with an ostomy. Knowing what it was like pre ostomy, this makes me really apprehensive. So what is like? What do I need to know? What do I need to do? I really want to get back in the air. I have an ileostomy that is high ou...

  I'm new to all of this and I'm trying to find another Police Officer with an ostomy. I had diverticulitis with a perferation in my colon and had to have emergency surgery.  Woke up in a daze and have a bag on my belly! Now I'm on sick leave waiting to be cleared to go back to work with.  I'm curious to see if I can still be a Police Officer with a bag. Luckily mine can be reversed, but wil...

I know, for me, I have a fearful dread with the notion of throwing-up! With having an ostomy I can't help but assume our immune systems are vulnerable at best, BUT there is a great deal of negative information on flu shots too. Darned if ya do ~ darned if ya don't, right?

This question is for ostomates in the US on Medicare using 2-piece systems with sealed pouches. As you know, Medicare will only cover 2 pouches a day (box of 60 pouches for a month). I am very short, 5'2", and use the 7" mini sealed pouches. I average 3-4 a day, not 2. I have tried the re-sealable pouches to extend their length of use, and it was a nightmare! My output is very firm, and emptyin...

Has anyone ever tried this company Cymed Ostomy? They make A MicroSkin pouching system? I recieved my samples in the mail today and I have never seen anything like this product??Thanks~traci~

How is it that you gain weight with your rectom and 12inches of colon gone??  I was 200lbs at time of my surgery and 250 three months later when I returned to work, and 3yrs later I still cant lose the weight????

Just wondering how many people you've actually met in person that have an Ostomy. I can think of two I've met, how about you?
kbd

i am fairly new here with my ileostomy but I find buying supplies to be a problem. The problem is the pricing of items isn’t readily posted like when you buy any other items and their seems to be collusion, price fixing, they are all charge the same amount. Do you all find this to be true or am I delusional. Where is the fair market on these items???

 

Hi Everyone, 

I am having a terrible time with itching under the wafer.  

I wear a convex barrier ring,  and gave been able to go 6-7   days. Now, the same day I change, it starts to itch. I have talked to an ostomy nurse, and she gave me a few options. First one was to try a glat ring snug up to my stoma with the convex on top that.  Today when I  took it off it was worse underneath....

I heard today when I ordered my supplies that Wright & Filippis will discontinue with ostomy supplies at the end of December 2013.  They will be directing all their customers to Edge Park.  Does anyone have any feed back with dealing with Edge Park for ostomy supplies?  Thanks.  Penguins7

Hi all

Not sure if this is the right catagory but here goes.

I want a dog. (shelter)

An american akita to be exact, they are my dream dog. However i do wonder...

Because they are so big (average of 120lbs) and have a prey drive i wonder if it would be a smart idea?

If they start pulling  the leash because they see a squirrel or whatever, can that movement cause any negative results with a...

well im divorced due to the ostomy.  she couldn't handle my medical problems so she walked away. i feel like trash, like im not worth anything anymore. she was having a affair while i was in the hospital almost dead the witch. sorry. bad day in court. custody hearing was today not good day.

Hi, im 18 y/o and have a colostomy. I've been asked by friends to go to a festival in the summer, where we'll be camping for 5 night, and i really want to go.

however, i know the the toilets will be disgusting and muddy by probably the second or third day. I'm just wondering if anyone one of you out there have been to a festival? How did you cope? Is it a good idea to change my bag in my tent?...

Intimacy is always a difficult area for us ostomates. Here is how I handle it.  Sometimes without my partner knowing that I have an ostomy.  Number one.  I bought one of those streatch weight or weight loss belts that Velcro together.  Number two, I asked my Doctor write me a prescription for an antidiarreal medicine.  Get lots depending on anticipated sexual activity.    For each 3 hour...

Hey yall...

Anyone ever heard of a non-stick ostomy bag called Nu-Hope?  I saw something online about it but haven't read anything here about it...just wondering...seems like a wonderful alternative when your skin is inflamed...like mine is now.  Can't seem to get it to clear up...the idea of a bag that is not stuck to my body sounds so amazing....lol...

Thanks,

Lori

Hey guys, I have a curious question about odor.  It is my understanding that there shouldn't be any odor from the ileostomy bag unless there is a leak or if you are changing it or emptying it. However, after my normal change today I have noticed a lingering odor.  I checked everything and there are no leaks or holes anywhere in the apliance and none of the contents could have gotten on anythi...

My mom has a recessed stoma which is situated in a crease in her belly. No matter what I have tried, her appliance keeps leaking. I’m using the Hollister barrier rings and it helps but it doesn’t stop the leakage. I use half of a ring to mold into the creases on both sides of the stoma and then I apply a whole ring on top of that. Then I put the appliance on top of that and use a hair dryer...

Here is another great video I found on YouTube:

For all of our trials and tribulations I want to share with everyone just what my pre ostomy life was like and the road i traveled....  UC for 24 years and accidents each and every week and the ability to focus on  my Anus only for fear that It would betray me on a daily and consistent basis, I lived in fear for 24 years.Having lived like that for so long I  forgot what normal was and bec...

Hi everybody,

First let me say this is a fantastic site!  A WOC nurse led me to you and I've learned so much from here in the past few days.  Maybe too much

Let me quickly explain my situation: I've been struggling with IBD for years now, been through all the meds, lifestyle changes, alternative therapies, etc and have only gotten worse.  Unlike most IBD patients, I've never known remi...

Okay dumb question,how to wear the ostomy belt?? even with stoma or at your waist??Even with stoma and it squishes in hips,nice indentation with jeans on?
Thanks

I’ve recently ordered a water proof Ileostomy belt cover, but it is not due to arrive until July 7-28. Can’t wait to get back into the pool again. Is it okay to swim with just the appliance in place, heard they are waterproof, with hydro colloid strips in place?  And can a hair dryer be used to dry it afterwords?

 

 

 

Hi everyone, I'm trying to find where i can order cheap but good ostomy products. My grandmothers insurance want let her make another order untill December 1and she's on a fixed income. if anyone knows any websites I would greatly appreciate it thanks so much. - Jessica

I have had my iliostomy not to be confused with colostomy which is less messy than an iliostomy for over 5 years now.  I am yet to find a line of underwear, belts or intimacy garment that firstly, feels comfortable, secondly prevents my bag from showing when filling like a watermelon bulge and looks in anyway aesthetically pleasing or doesn't let my fanny hang out...I'm a designer and I've pur...

Hi, I am currently putting together some information on Ostomy Appliance Subsidies around the world and am seeking info on what countries have a government subsidy to help to cover the cost of their appliances. I would like to know how much is covered (%) and if there is a financial or quantity limit on appliances and how much plus anything else which could be of value.

Any information about ...

i know this subject has been talked about on several blogs but now it has happened to me and i need you to help.i met a very nice guy. lives about 30 minutes from me. we had a wonderful meeting and both left with phone calls and plans for him to come here for dinner.  now the big question ( i know this subject has been asked before)  should i meet him again or wait til he comes for dinner to...

I had my (emergency) transverse colostomy on December 1st, after a bout with diverticulitis wouldn't resolve, abscesses formed and ruptured.  The doc said we need to wait 6-7 months, at least, before reversing it.  I am wondering what others' experience is in regards to the timeline for reversal.  It seems to me a good idea to wait until everything is healed and strong, yet it also seems ...

Fellow members i would like to get your thoughts and advise on how you accepted your ostomy. I have had my Urostomy for 5 years and i can't get passed it i have lost a lot because of it and i'm sure i am not the only one that has been through hell. I have talked to a few people and have been offered meds but i don't want to take more meds. There advise was just to say your lucky to be alive but...

Has anyone tried the Nu-Hope Non-Adhesive Ostomy or Ileostomy System?  I just ran across the system in The Parthenon Catalogue tonight. My husband has not accepted his ileostomy-after an attempted failed surgery and I don't know that he ever will.  His mood swings between depression and anger he is not very open minded about trying new products.  

I kind of have to sneak new products in...

Does anyone know if we can eat Weetabix with an ileostomy?

It’s happened 3times now. I have removed the  clamp to my bag while sleeping and woke up to a disgusting mess. Has this happened to anyone else? Any suggestions or solutions would be greatly appreciated.

 

Anyone ever try the Celebration ostomy support belt? Seems like a cross between various belts with all the features wrapped up into one belt. I’m gonna research it a bit more and may give it a try. ‍️

Good Afternoon,

I have had IBSC my whole life and at 47 it finally took it's toll on my colon and had a full open colectomy in July of 2015 but I did not have an ostomy bag after that surgery. After that, things still weren't working right. It was discovered the rectum was damaged as well so in November I had my loop ileostomy surgery. I have done much research (alot of it on this site) and ...

For years following my 1964 surgery, I used a United appliance that compared to what I wear now as a Model T compares to a Lexus.  It had a rubber-coated, malleable metal piece that went 'round my stoma and attached to my skin after I brushed on some sticky, white cement (called Skin Bond) that would later have to be removed with an alcohol-based solvent.  The attached bag was rubber (or a ru...

Okay, so my wonderful husband put on a new bag for me last night. Noticed it was pooling around the left side this morning. It wasn't leaking out but I could see it working its way to do that, so I changed it myself.

Then this afternoon the bag itself was wet in the back????? I checked my skin and there were more areas of pooling but nothing breaking through. Just the bag. Is that a supply iss...

I really need help. I have had my colostomy for three years and I just can not accept it. I have tried support groups,I have prayed about it, talked to my family. Nothing helps. I am 60 years old if that makes a difference but I just think it is so disgusting and I feel like an animal. My husband has been wonderful and when I have a leak which seems to be happening a lot lately he is so good ab...

The area around my osteo is very raw and bloody. The bottom of it is an inny. The BM pancakes under the bag. We have tried everything we know to use. Do y’all have any recommendations or know how I can get help with this problem?  Has anyone else had this problem? Thank y’all so much. 

 I woke up this morning with Pain on the right side of my ostomy  ( left sided Ostomy ) with some swelling, low output , very little and in a streem looking stool  could I be constipated or  maybe something else going on  I have never had this problem before.  I did have quit a bit of Pasta salad yesterday  could this cause the problem.  .

 

Cant seem to find an ostomy supply place that takes insurance.  Any help out there?

does anyone have problems with the adhesive holding ostomy appliance secure when outside "playing " in the garden,esp on a warm day..Mine tends to spring a leak when I do much bending.Don't know if it's location of ostomy(ileostomy) which is barely below waist line or adhesive not being strong enough to hold stress of exercise...Spring is finally getting here and I love being outside playing in...

I had a sigmoid colostomy 2 weeks ago and am having constant problems with appearance and smell.

I have a small diaphragm so they were forced to place the stoma right next to the belly button. To offset the increased risk of hernia in this location they brought it out a full 1.5". Of course sex is impossible because the stoma would be in the way and I can't use my abs. But the main problem fro...

Hello everyone ,
                         This is my first post on this site but, I come here often and have gotten some really good information from some of you.I have had a colostomy for 10 years and up into recently I have had my health insurance pick up either 100% of the cost of my supplies or at least half recently my place of employment changed insurance company's ...

Hello, I got a Colostomy on June 30,2014 as I had obstructed colon probably caused by radiation I had from my Anal Cancer. I had many issues with it, leaking etc..and my skin became raw as could be. I had a Second Operation the week of Thanksgiving. The surgeon made my stoma larger and raised what he could however I'm still having leakage problems on the bottom area. Because of this, my skin a...

Ive had my ostomy for about a year and a half and dont understand why there isna readily available  disposable devise/shield out here  to protect and keep your bag waterproof during a Shower - any suggestions out there. Guess im missing something?  Btw- Reversals---- ive had two Unsuccessful attempts- bottom line until they Gut you ( me 4 times total)-- they dont Really know whats up - false...

In dec 2017 LAnthony89 posted stating he was in dire need of supplies as he had suffered a severe loss in a home fire and was supporting a new baby.  I emailed back and forth with him and agreed to send him MANY supplies that I could no longer use, as long as he would pay shipping.  He GUSHED his grateful comments and PROMISED to reimburse the shipping costs of $21.16.  I made it clear I liv...

Hey!

I unfortunately had to have an emergency colostomy due to diverticulitis/peritonitis. It was pretty touch and go during surgery! My surgeon approved me for reversal surgery 6 months post-surgery. It has now been 4 months and he is MOVING! So I have to get a new surgeon in the next 2 months! Super stressful.

I'm really nervous about what to expect after the reversal. I have read some horr...

 My surgery for rectal cancer is scheduled October 9, and I will emerge from surgery with an ostomy.   Naturally, I have a lot of questions and my learning curve will be very steep.  But, my immediate question is about clothing to wear with an ostomy. I would like to go shopping before the surgery if possible but I’m not sure about what to buy.   My typical work attire is khakis and butto...

Hi Gang,

  I don't know why I'm asking........so don't ask.........guess I'm just in a playful mood tonight.  My funniest was only funny to me, because I'm the only one who saw it........but I'll never forget it.  I was at work and I went to the little boy's room to dump my bag.  When I walked in there I noticed it's pretty busy, with only one stall available.  So I headed on in and did w...

Hi,

 

Looking at switching to a one piece drainable system for my colostomy, which has more liquidy output, and I am looking for a filter that doesn't clog 

an hour after I put the bag on. I currently use a two piece Convatec, but the filter fails almost immeadiantly and I am having some wafer adhesion problems, So...... I am looking at the Hollister Cera Plus

and the Coloplast Sensura M...

On my last order I took a better look at all rings on the shelf. There were a lot of them. What I found was Brava rings with a 27 mm hole ref: 12037. Just my size. No more stretching  and pulling to get a fit. I always had a hard time keeping the hole round. Just have to see how they do, how long they last. I was trilled just had to tell everyone.

Had ileostomy surgery in July, tho I had fatigue before surgery I always thought it was just nutrition and illness related. I'm doing much better nutrition wise but my fatigue is far worse. I'm severely exhausted, I am dizzy, I black out and have fainting spells from pressure changes such as entering another room or standing to fast. I often wake in the middle of the night my heart racing, dizz...

Hi Gang,

  Was sorting thru my pile of mail this morning and noticed a large envelope from Coloplast. Opened it and inside was a new brochure for their Sensura Mio barrier and bag combo. What caught my eye was the large print at the top of the brochure saying their bag material was QUIET, in caps.  So apparently the new thinner crinkley material used by Hollister and others is getting enough...

I'm Getting ready to go back to work. I sit with clients all day. My worst fear is that my stoma will sound off. It can be noisy and loud at times. Any suggestions on how to muffle or quiet my stoma?

Hi, I just recently went back to work. I work retail, so close up with customers. I would appreciate any tips on how to make sure my stoma is quiet during work hours.

I have an ileostotomy........has any one sky dived with a bag? does it blow up with air.....if i did it shoud i bring a change of bags.....some how I think the thrill of the jump is worth the shit i may have to deal with once on the ground

I know most of us are experts and know all the definitions af all the stuff we use for our situations. Sometimes a newbie could iuse a little help with the terminology and I copied this for that purpose.
Mike

Ostomy Supplies and Descriptions
For new ostomates, the first step of taking care of your ostomy is to first understand all of the ostomy supplies, how to use them correctly, and how they w...

Hi Gang,

  Another one of those things that makes me go huh?  My Hollister bags (2-piece) have the top of the hole (that attaches to the barrier) about an inch down from the top edge of the bag.  Why do they do this?  Why don't they put the hole right at the top of the bag?  Are they expecting us to do handstands when the kids are around?  When would your output ever occupy the space abo...

My best friend is crafting ostomy bag covers for me. However, the part that fits over the top half of the bag keeps popping off and then the cover falls off. :(  how do covers "fit"? Elastic or....?

I have an ileostomy and i like to use closed end pouches and change them twice a day.  I can carry an Ostaway Bag (black, thick, zip-lock) with me and keep a fresh closed end ostomy bag with me in my pocket.  Often when I am at someone's house i need to dispose of one bag and put on a fresh one.  I really prefer using the closed-ended pouches and i know there isn't any smell if they are p...

I had my operation just before Xmas 2011, and I will be talking to my surgeon in a few days about the possibility of a reversal. Are there any complications getting things to work again. What about leaks?
I have heard that reversal surgery is quite common.....That makes me wonder why they don't do it that way to start with?

This may sound like a really stupid post but here goes!

I adopted 2 rescue cats at the weekend and on the way home I kept one pet carrier on my knee n the car, we had to stop and change places part way home because little claws kept poking though the carrier and getting too close to my bag for comfort! Now we have them home their little mischevious things and keep climbing all over me, got a f...

Hi I'm getting an ileostomy done on the 29th are there any tips or advise u guys can give me

Greetings all.  I stumbled across this web site last night and would really appreciate any advice from the community here on a potential upcoming ostomy reversal.  This is my first post here and I apologize in advance for the length.

I’m ~6 weeks out of the hospital from emergency surgery that involved: removal of a (non-cancerous as it turns out) blocking mass in my colon (that was bad ...

 I noticed online while searching youtube that there are "ostomy hacks". Such as wearing the bag sideways. Have any of you tried this? What are other hacks that you can do? My other question is has anyone found something they find works best for leaks? Also, on average how often does everyone change their bag? Im trying to gather a "average" so that i can use this information on educating peop...

Have had  an ileostomy  for years,  have tried several suppliers, but I need one  that understands  the meaning  of customer service,  a company  that understands  follow  through !,  etc !!    Does anyone  have a supplier  that exceeds  all expectations  or  am I  asking  for the moon ?  Im  starting to think so !  Thanks to all in advance !!

Hi

 

I have had my illostomy bag for 4 yrs now and I am about to get married.  This will be my first time with my illostomy bag having sex.  I am just worried about it getting in the way, while we are having sex.  Please advise what your experience has been.  I did by a ostomy belt however the bag is still sticking out I would really like to not worry about it getting in the way

 

Tha...

Hello All

I really dont know what i am seeking from this post exactly. Just general support I guess so here goes My Story, my fears, and indecision.

Last year on May 26th I was diagnosed with Colon Cancer. I did amazingly well with that. No radiation but did do 6 months of Chemotheraphy. Finsished my last treatment on Feb 8th of this year. I was left with a colostomy bag and at first thought ...

Who has trouble with Medicare approving extra pouches for two system pouch?  

I'm rather new at this and would like to know how others handle swimming when you have an ostomy--especially the men?  My wife and I are going on a cruise in about 2 weeks and I am really anxious about swimming.  My colostomy is high on the left (above the beltline).  I normally use Sensura 2-piece.  It has been suggested that I use a short-sleve wetsuit but I think that would be awfull...

HELLO ALL!!!
I AM A 32 YEAR OLD FEMALE AND CHILDLESS.  I WAS WONDERING IF ANYONE WHOS HAD THERE STOMA FOR AWHILE HAD ANY CHILDREN OR NEW OF ANYONE WHOS HAD A CHILD AND IF SO WAS THERE ANY DIFFICULTIES IF ANY?  THANK YOU IN ADVANCE FOR YOUR HELP.

Hi there, I need some advice please...I've been going to my local nightclub for 5 years, I guy who's also gone there all that time (and longer apparently) is suddenly showing an interest in me. He's very shy, quiet and hardly talks to anyone but his close mate, they're both bachelors, it was my new 'hairdo' (my wig since hair loss due to low dose chemo for my crohn's) that did it, they were lig...

Is there such a thing as an ostomy diet?
I am barely getting any output from my colostomy in at least a month, and I have absolutely no appetite.
Last year I was in hospital with what they thought was a partial small bowel obstruction.
My "diet" has been  small amount of baby oatmeal and some coffee at breakfast: maybe cup of soup for lunch. Small amount of yogurt, jars of baby fruit.
I tried...

Hello all!
My mom is 68yrs old and she underwent colostomy surgery, after getting diagnosed with rectal cancer. Its been a month after her surgery & she is having a horrible time keeping any food in her tummy. She is feeling nausea, vomiting & stomach cramps. We are taking every measure so that she avoids gas causing food. She is taking digestive enzymes & antacids too but it is not helping at ...

Hey-I had my Ostomy surgery on 7/28/21. My colostomy is permanent due to cancer. My stoma is an innie and flush to my skin, this has made things difficult for me (leaking, blow outs, consistently stool on skin, burning/painful skin). Has anyone had a Ostomy revision surgery and can share their experience? Time in the hospital? Recovery time? And just generally what to expect. Thank you 

Hi,

I'm new to the site so hello everyone. I had an ileostomy in May and still trying to find products that will work for me.

I'm paraplegic following a spinal cord injury in a motorcycle accident 3 years ago and now race a handcycle for exercise and fun, however when I'm training and I start sweating my wafer is coming away and I'm getting in a mess. Also due to my paraylalsis I often don't ...

I always keep a roll with me. Good for taping edges if you go  swimming.  Good for  emergency if you start to spring a leak. Good for extra adhesion if you are going to get sweaty from exercise or yard work. And it's  cheap.  

Hi Everyone

I've been using Hollister bags and flange with an Eakin ring and Attiva flange seal ring, but after I've emptied and cleaned the bag with water several times during the day, there's leakage under the Attiva which sits under a roll of fat. I've tried adding 3M tape in the area but I still get leakage.  And on top of that, there's now a red rash all around that area, so my doctor s...

Hello everyone, 

So it's fourth of July weekend and I want to go swimming! But I don't know how that's going to work now. I've had my illeostomy for around 6 months now and am still learning what I can and can not do with it. 

 

So my biggest fear is that my bag will just come off in the water. Is that a possibility?

Is there a limit on the time I can be in or activities I do in the wate...

Hi I'm Tom I'm 51 and a wheelchair user due to Spina Bifida my problem is that I've put a lot of weight on recently and can't see the stoma due to my stomach sticking out . I know I've got to lose weight but in the meantime how do i mange to change my bag any help would be greatly appreciated. 

Hi Gang,

  I ask that question because from the second I came around after surgery until present day I crave my drinks be icy ice cold.  I'm talking Slurpee cold!  Doesn't matter if it's water, ORS or milk..........I got to have it COLD!  I don't drink coffee or alcohol, but if I did it would also have to be semi-frozen for me to enjoy.  I'm thinking this is more caused by my being short...

I am looking to get an ostomy wrap for both going to the gym and normal everyday wear, mostly to make things less visible. The 2 sites I've found are Ostomy Secrets and Pouch Wear. Can anyone give any suggestions, reviews, comments, complaints or any advice on what to get, avoid or anything? Thanks.

I'm having trouble purchasing ostomy supplies. I have Medicare, But Parthenon now wants all $$ up front & won't bill Medicare. Is there a more user friendly company you use to get your supplies from? I'd sure like to know who other folks are using. Had had ostomy since 1986, and don't need these kinds of problems now. I'm in Denver metro. Thanks BUNCHES!

Is there anyone out there that has had a hysterectomy performed while having an ostomy?  I have an illeostomy and the gyn says I need a hysterectomy however he has no experience performing one with an ostomy patient.  I am very uncomfortable with this situation and am having difficulties in finding an experienced doctor.  Please any advise/information would be greatly appreciated.

Has anybody had a ostomy reversal and how did it go

Hello Everyone! Is it possible to become regular with an ostomy? My dr told me to drink Citrucel everynight to become regular. I find its all day long, Is it possible to train your colon?

Hi, 

Does anyone know if they make a paste that has an attachment to squeeze the paste deeper under the wafer??? Like a cake icing attachment?

I find paste such a nighmare to use!

 

Thanks,

Kathy

Hi, I have read several different posts in which people reccomend different yummie tummie products, spanx products, and other things such as this. I am not sure which one to get or which one works best and these are things I dont think you can try on. My main issue is that when my bag starts to fill up its all at the bottom area and getting fatter and fatter. also when I wear jeans the surgeon ...

G'day All,

My main aim for joining this forum was to discuss daily/weekly living with a stoma and various techniques employed to manage. Chances are this has been done before here so apologies if so. I hope by detailing some aspects we may all learn something from it - especially me from others and their techniques or possibly questions.

I had bladder cancer nearly 3 years ago so out came the...

I fell this may be a stupid question and I dont recall asking my ileostomey nurse if you need a special seal when taking a shower or bath. Ive been taking the seal and pouch off when showering but I miss just laying in the tub soaking. Do I need a special seal or pouch to do this..like i said it sounds like a stupid question but im in the dark on this one... Id ask a dr here but im new to this ...

I'm a new ostomate and have been struggling in keeping my skin irritation and blisters at bay. I've had some luck streaks before where skin irritation was controlled but as my stoma grows smaller (doc says it's normal as inflammation goes away), I had to make the hole in the flange smaller too (used to be 40mm now it's 35mm). But my problem now is that the skin around the stoma is irritated and...

Hello all,   from New Zealand.
I'm probably a long way from most of you.  But I love this web site and you have all helped me so much with your great hints and ideas.  Though the  problems are the same here as the rest of the world it seems.
I was wondering if anyone uses the pouch I do. "Eakin Pelican Convex Drainable".  It's a 1 piece.  I have had a permanent  colostomy for 5 ye...

Hey Gang,

  I was talking to a buddy of mine, who's a recent ostomate (by choice).  I was telling him about the samples I'm expecting from Hollister, and I was surprised to hear him question if I was "abusing" the sampling system.  I asked what he meant and he explained that if everyone asked for samples, and did it frequently, it would just drive up the cost of the product.  So I sat his ...

No longer need this product: Coloplast Sensura one piece closed pouches - 10 boxes of 30 untouched. 

hi all.  Pretty new to having a colostomy and glad to find this helpful forum.

 

i was wondering for those who use these pouch liners, what brand and item number of 2 piece flange system do u use?  i use convatec natura but it is bulky for my liking

 

Thank you in advance

I am having a nightmare. Ever since I have had the bag fitted it has leaked every single day. I have to change the bag sometimes four times a day. It leaks at night when I am asleep. I have to wash my clothes every day. I have been given different bags, rings, extenda tape, tablets, sachets and powder to spray on but nothing works. Please, someone must have suffered this, any ideas much appreci...

Hello my name is Lily i am writting to you all because my professor has requested from me to arrange a couple of questions, of my own and find out answers from your end. I would really apreciate it if you all could answer my questions. 

1. What is the best time to change your pouch?

2. How many times do you empty it out and how?

3. Can you control your bowel movements?

4.  What are some l...

I had written earlier about needing to change my bag style due to upcomming left hand LRTI surgery.  I contacted my Ostomy nurse that I had at the hospital and he was very helpful!  He helped me to calculate about how many of the closed bags I would need and the type number.  We also figured in some extras incase of emergency.  I reported what I needed to my VA provider and they will be ord...

Has anyone come up with anything to waterproof your appliance? I’ve heard about using pink tape. Anything else.

Also suggestions for traveling? Going on a Viking cruise and scared to death of leakage during the night. 

Hey y'all! I like to ask a question about the ostomy belt. Does anyone have any issues with theirs that clips on to the waffer? My belt on the single layer side always rolls up becomes deformed and digs into my side. On the double layer side it does not happen. Thanks

I need some advice or maybe just some support! I am three years in with an Ostomy. I have tried to accept it and live with it but I hate it! My cole rectal surgeon said I he would not ever reverse me considering I have had four colon resections and almost died from the last one. I have Crohn’s disease. I have to admit I was a mess before the Ostomy. Always in the hospital missing time with my...

Hello new friends.  I only just recently found this site and am very glad I did!!  I have a 2-year old born with Cloacal Exstrophy Sequence.  Any other men born with this defect? I'm looking to talk with people (boys) who are older and can give us input on how you have been handling life.  Thank you, in advance, for your support!!  -debbie

Hi, this may seem like a silly question but I’ve been cleared to start going back to the gym and I was wondering if anyone else has gone to the gym after getting their ostomy. I am anxious to go back to the gym but I am worried as well.  I have so many questions that keep going through my head.......”what if I sweat so much it makes the bag start to come off?” “What if I do something t...

Hello
Could you let me know which online stores carry Coloplast ostomy scissors?
My ET nurse has very nice Coloplast scissors.
I like to to buy a pair of Coloplast Scissors, too.
And how expensive are they?

Thank you
Syd

Hi everyone. I always said I was chicken shit to have the reversal done cause of pain. Now I have a hernia that can only be accessed by cutting me open. I've decided to go for the reconnection. Surgery is early Dec. I so wish it was behind me, no pun intended.

I really like this site, to know there are people going thru or already been through things that I knew nothing about when I first got ...

Hi, I've had an ileostomy for a little over a year now. I'm a NHL cancer survivor so I acquired mine for reasons different than most and all this time I haven't been working or in school so when my bag makes noise usually whoever I'm around knows what's going on but since I will be going back to school this fall I am nervous about my bag making noise. I've been embarrassed at church and at a sm...

I've always had problems with adhesives remaining on my skin for longer than 24 hours.  I start getting itchy by the 2nd day, and by the 3rd, I find myself popping allergy pills like candy in an attempt to lessen the itches I can't scratch beneath the peel-n-stick part of my ostomy bags.  It's especially worse in the event that the adhesive gets the tiniest bit wet.  So sweating?  Bad.�...

Good day,

I have a question here. Is it possible to get a colostomy reversal even though the rectum and the anus was removed?

My 11 year old daughter has been suffering from gastrointestinal issues for several years now, and recently went in for another test. From the results of this test, the doctor came out and told me that he wanted her to be admitted into the hospital to clean out her system, do a test that would show the contractions of her intestines,  and also do a surgery that would be an ostomy that would pl...

I've had my ileostomy since December 13th of last year.  I've not had any major issues with the bag to this point, but now I have to make a decision.  My diagnosis came back as UC, meaning I have the option of either getting a j-pouch, or getting the rectal stump removed and staying with the ostomy. I'd like to hear what others have to say, good and bad before I decide, what do you guys think?

I'm on Medicare. I need wafers. Who can I order wafers thru that won't make me pay up front, & hopefully get reimbursed by Medicare? Thanks. I can't seem to remember who I've been ordering from, and they never followup with me. Thanks so much!

Hello there fellow pantyhose wearers! I need some advice. In the winter months, I have no option but to wear tights or hosiery under dresses and it’s causing me a lot of pain. I haven’t had anything burst because I empty it a lot more frequently, but I definitely wear dresses for special occasions only due to the discomfort. Thigh Highs aren’t really an option because my legs aren’t ton...

Hi all im Jaso 57yrs old and i had a stage 4 tumour removed from my colon in January and after 3 months heavy chemo im now in remission.I have had a temporary ostomy on my left side for nearly a year and im quite used to it now.My reversal has been put off till possibly 2024.My question is it worth having as i will be nearing 60 and not sure if i will be mentally strong enough to handle it as i...

Hi, I'm new to all this.  Had my surgery end of Feb and am feeling pretty good. Want to get back to yoga but unclear about laying on my stoma. I have not layed on my belly since surgery.  Is it safe?

thanks!

I have a problem with ostomy bag odor at all times not just when I empty it. I am really getting self conscious . Is anyone else having this problem?

Hi everone.
I have read a lot of your problems and was hoping to see someone with a double ostomy. So far I have seen none. I have had a rare cancer and it took my bladder and part of my colon. I have a discharge coming from my rectum and it is very annoying. I have trouble enough with the double pouches let alone I have to wear a pad too.Is there anyone out there with this problem?

I'm a relatively new Ostomate... Colostomy Sept 2019 changed to an Ileostomy Jan 14 2020.

 For 2 months with my new ileostomy I was doing ok, trying different procucts to meet the need of a highly liquid & at time high volume output.

About a month ago after regaining about 5 pounds quickly I started having leaks... Before when I had a Colostomy with a thick output I rarely had leaks... a few...

Question, Do exercises exist for post colostomy ops,and are they recommended by doctors? It seems like I've been "training" for well over a year and almost everything I attempt ends badly.Ie hernia, it's not like I'm trying to run marathons or swim channells, just everyday stuff like jogging to the mailbox and back without my heart racing like crazy.Or swimming any stroke that entails arms over...

I am losing my insurance coverage at the end of the month and am looking for ostomy supplies.  I have a colostomy and have no source of income so am looking for cheap or free supplies.  If anyone has any ideas please let me know.  Thank you.

If you've been on the dating scene since undergoing your ostomy surgery, what kind of dating experiences have you had when you told a prospective romantic partner about your ostomy? How and when did you choose to disclose? What was their reaction and how did it affect you?

I think it would be interesting and helpful to have a dedicated thread for real life dating with an ostomy stories. If it'...

There is a wonderful organization called "Friends of Ostomates Worldwide" (FOW for short) that collects ostomy supplies that you no longer have a use for.  They send them to third world countries, particularly Africa, where women are raped with objects that end up requiring a colostomy. FOW will even send you a receipt for tax purposes.  If possible, send items in original packaging, so they ...

I have presumptive Covid-19 because AZ test labs will only take Police Officers and front line responders to the proper labs. The swabs they shove in our brain (ok, I exaggerate!) are used to rule out the flu!! I have been a mess for nearly 2 weeks and now I'm having new pain. It's double over pain that feels like I'm passing a 12# baby out my butt. I have an ileostomy and only a small rectal s...

Hi all,  I don't always remember my dreams and sometimes wish I didn't remember the ones I do.  One thing I've noticed in the past eleven months since my first surgery is that any dream I did remember that I was a participant in, I did not have an ostomy.  I was my normal pre-ostomy self.  Last night for the first time I had a dream where I not only had an ostomy, but I was wearing somethin...

I've recently taken up a casual sexual relationship with a friend whom I hadn't seen for 15 years. He hasn't said so, but from piecing together a few clues I think he has had a colostomy or ileostomy. He has crohn's and when we went to bed he kept his shirt on, trying to cover something around his waist. I thought it was a like an athletic support for his stomach or back at the time, but there ...

Hello

I will be flying for the first time with my pouch. I usually carry a bag with emergency changing supplies when I leave home. Of course this bag includes small curved scissors. Will it be allowed on a plane and if it’s not do you just pre-cut a pouch and pray it’s the right size. My stoma size fluctuates, so if guys have suggestions, they are welcomed and appreciated. I know a lot mor...

What have been your experiences with wearing an ostomy bag horizontally rather than vertically? Also, I recently had surgery to remove my rectum. I am experincing urination issues and sexual issiues (I can't get an erection). Any thoughts on these subjects would be helpful.

I don't know how many people out there are experiancing a problem with a large hernia around their stoma.. I have for years now and Coloplast has come out with a new barrier that fits like a glove..   

 

https://www.coloplast.us/landing-pages/sensura-mio -convex-flip-page-ppc/?gclid=EAIaIQobChMIl82b_o7g5 AIVkrfsCh12owweEAAYASAAEgIS6fD_BwE&gclsrc=aw.ds

 

I just started using them at the be...

I was just curious to see if anyone else has issues with ostomy adhesion because of cold, dry weather.  I had my surgery one year ago yesterday, this is my first transition into Winter and I am having some trouble.  I honestly didn't have too much trouble with the warmer weather, my best guess is that my skin under the wafer is so incredibly dry that it doesn't stick well. Does anyone have a...

Can anyone recommend a hip wrap, the kind that resembles a tube top, but is worn around the hips and covers the bag. I have some tops not long enough to hide it and I don't tuck it into my pants because it's uncomfortable. I'm looking for the kind that's very soft and stretchy, and has the silicone edging so it stays in place. When I look online, the descriptions are not always specific and I'v...

what do you people put inside your bag to stop oror? i used the fropd from ostomy store but it does nothing. ty for your help

I recently began having severe itching and rash underneath my Ostomy bag. It occurs only at the outer edges where the bag adheres to the skin - not the center portion where I use the paste. I thought I had developed an allergy to the glue used in the adhesive. When I would remove the bag it would have a very red circular rash at the border of the bag.

I showed my doctor a photo and he immediat...

Have any of you had issues with eating watermelon?  I have been trying new things since New Maxine has allowed me to eat alot more things that I couldn't eat before.

15 weeks after my emergency sigmoid colostomy surgery I am bag free and doing pretty good. I had read so many horror stories about reversals I decided to keep myself offline. I opted to be upbeat physically mentally and spiritually before reversal. I still have some pink colored drainage from where stoma was and it’s sore but it’s managable. I take 8 extra strength Tylenol a day as I won’...

I just passed some gas into my bag. Well I looked in the bag (I have a clear one while awaiting for my others to get here in the mail) because today my ostomy has been extra productive so I wanted to know if it needed changed. Well I then passed gas again and it ballooned and right in front of my.stoma, stuck go the bag, is a waxy semi clear....something. it came out with the gas. While I can't...

hi
thanks for the adivice about visiting. i was wondering if anyone has found a good book about living with a colonostomy.
thanks
marjorie

Hi, all. I'm considering attending the UOAA conference in Newe Orleans in early August. A long ways from the mountains of Nelson, BC, Canada, but I so want to meet other ostomates in person. It looks like a great line-up of information, networking and entertainment. Just curious if anyone here was considering attending.

HI...can anyone with an ileostomy tell me what they feel like when their Crohns flares?

Hi Gang,

  Did anybody buy an Ostomy Amigo?  I'm not sure they even got any product out the door before they went under, but I found a pic of it online and I really want to copy it for myself.  If you have one can you let me know.  If you don't want to lend it to me I'd just like to see some more pics of it.  Here's a link with a review that I found, including a video. 

regards,

bob

...

While I was again researching cheaper ostomy supplies for us, I came across another website called healthwarehouse.com. All of my supplies are on the site. The prices are so much cheaper than Liberator, Edgepark and other suppliers. I just ended up purchasing a box of 20 Hollister New Image mini 7" drainable w/filter pouches for $55 with free shipping. If I had used my medical insurance company...

I lost my supplier recently and now I am having trouble finding a new supplier of ostomy products...pouches, paste, tape and wipes. Will some of you Indiana ostomates let me know where you get your supplies...thank you so much...

Hello all this is my first post here, i am 25 years old, when i was 23, i was robbed and shot point blank in the stomach, i woke up with 37 staples and a colostomy bag, i was initially promised a reversal 4 months after my stomach wound healed up, the doctor lied to me so many times i really dont wanna go into it

i have taken all tests required to do a colostomy reversal and i am good to go, b...

what is Barbie butt and can you explain this too me I am having a permanent bag put on also have a fistula. also any advice on clothes to wear that are comfortable and not visible of the bag also can I lay in the pool safely

Hello all,

I am happy to say I am one week post-op from a successful colostomy reversal. I spent five nights in the hospital. My surgeon uses an epidural for pain control. 



Surgery was a Friday afternoon. I was on ice chips only until Sunday morning when I was put on clear liquids. My gut constantly felt like there was a party going on in there! Painful, but I was also glad it woke up so qui...

Hi Guys,

  In my other post about the funniest thing that's ever happened to you ostomy-wise "ron in mich" reminded me of the dog reaction thing.  So I'm wondering..........is it just me or do all dogs want to sniff your bag when they meet you?  I love animals, but always have to be a little guarded now when I run into a new pooch.  For some reason (and the reason is they like to eat shit)...

Does anyone know of something that actually works for swimming? When I bath or swim my skin barrier loosens. Does anyone know of a way to keep it dry during wet activities?

Had permanent colostomy February 9 this year, now it has been almost 3 months and I am wanting to get back into working out.

Before my surgery the surgeon told me there would be basically no restrictions on my activity, but now I am hearing that I can't lift more than about 15 lbs for the rest of my life or I risk a hernia! An ostomy nurse also told me that I should be careful doing sit-ups or...

I have a few Coloplast Mio 10471 pouches to give away, pick up only. I've sent my contact info to the (Portland) oregonostomy.org, but have not yet received acknowledgement... I am in communication with UOAA to start an ostomy interest group in Beaverton. Besides offering support, my goal is to also start 1) a supply swap meet (I use A, but would like to try B), and 2) an emergency supply close...

I had an ostomy eight months ago and I'm ready to get back in the pool. Any suggestions from swimmers about how to keep the appliance water proof? I am wondering if I will need to change it more often because of being in chlorinated water. Thanks in advance for the advice!  

Hi there,

I'm actually writing on behalf of my mother, who underwent a surgery for an ileostomy about eight weeks ago. She's suffered from Crohn's for 30 years. 

Everything went wrong after the surgery, despite the surgery itself being a success and the stoma being "beautiful" (-quote from the surgeon). Mom developed pneumonia and then experienced kidney failure. She spent 2 weeks in the ICU...

Hi. I'm new to the site. Ive had my Ileostomy for about 12 years now and this is the first time ive ever reached out to a support site or anything . I'm kinda nervous.  I dont know why. But i have a question. Has anyone ever has their stoma moved like an inch??? I've been very fortunate not to have any problems except for obstructions after the birth of my son. But that was corrected thankfull...

I had a sample of the sensura mio coloplast bag with the circular filter around the stoma. I know it obviously filters so filters get dirty but....eww...in just half a day of use it's covered in fecal brown. Also since it is a filter it has tiny dots on it so it's like polka dot poop. Or so I assume. Either way it's grossing me out. Otherwise, I love the sensura mio. Is it supposed to look gros...