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Oct 01, 2019

Ostomy and C-Diff Infection Experiences

This topic is about the experiences of people with an ostomy who have dealt with a Clostridioides difficile (C-diff) infection. It covers how the infection is diagnosed, the treatment process, and recovery experiences. Here are some insights and advice shared by others:

1. Diagnosis and First Signs
- C-diff can be diagnosed within 1 to 2 days after submitting a stool sample at the ER or hospital.
- The first signs often include a sudden, unmistakable odor and/or very bloody ostomy output, with bright-red blood filling the pouch.

2. Typical Treatment Course
- Hospital stays can range from 4 days to several weeks, depending on how severe the infection is.
- Treatment usually involves IV saline, a liquid diet, and antibiotics specific to C-diff, with probiotics continued at home.
- Full recovery might take weeks to several months, but with proper care, most people return to normal.

3. Risk Factors and Prevention
- Recent or repeated use of broad-spectrum antibiotics and corticosteroid injections can increase the risk of C-diff.
- Avoid using antibiotics unless absolutely necessary.
- Since C-diff is highly contagious and can recur, practice strict hygiene:
- Wash hands frequently.
- Disinfect bathroom surfaces, spray living areas, and use a disinfectant laundry additive.
- Shower daily and change the pouch daily while the infection is active.

4. Recurrence Awareness
- C-diff is known for recurring, so continue taking probiotics and monitor your output and odor closely after finishing antibiotics.
- Seek immediate medical attention if symptoms like bloody output, the characteristic odor, fever, or abdominal pain reappear.

5. General Observations
- Having an ostomy does not cause C-diff; household members might carry or shed the bacteria without getting sick.
- Once you recognize the smell of C-diff, you will be able to identify it instantly if it comes back.
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