This topic is about a woman who has undergone a cystectomy, which is the removal of the bladder, due to bladder cancer. She now lives with a urostomy, which involves an external pouch to collect urine. She is seeking advice on managing post-operative issues such as pain, intimacy, exercise, clothing, and support belts. Here are some insights and advice that might be helpful:

- She is experiencing persistent pulling and tightness around the stoma, numbness, and a tight-muscle feeling in the groin area where lymph nodes were removed. There is also pain in the right hip, side, and back, which could be related to the kidneys.

- It is important to clarify the surgical details with the surgeon to understand which organs and lymph nodes were removed. This can help explain the tightness, numbness, and pain.

- A professional exercise plan is recommended. Consulting a physiotherapist who is familiar with abdominal and urostomy recovery can help tailor exercises to stretch scar tissue and strengthen the core.

- Engaging in general low-impact activities like gentle walking and short bike rides is beneficial. Progress should be slow and steady.

- Using hernia-support belts during exercises that stress the core muscles can help prevent parastomal hernias. The CUI hernia belt is recommended, and some people use a homemade over-belt for extra support.

- Healing can vary, with ups and downs over many months. Pain and numbness usually improve gradually, but the time frame can differ for each person.

- For intimacy and pouch concealment, non-transparent pouches can boost confidence. Hollister offers opaque urostomy bags designed for discretion. Specialty lingerie or garments from OstomySecrets, or inexpensive options like garter belts, long scarves, or high-waist lingerie, can help hide the appliance.

- Open and playful communication with a partner is important. Many couples resume intimacy once incisions heal and comfort returns. If vaginal scar-tissue tightening makes intercourse painful, consulting a gynecologic oncologist is advised, as it is often treatable non-invasively.

- Regarding pregnancy after a urostomy, other women have successfully conceived, and delivery is often by C-section. It is important to discuss risks with a specialist team.

- Maintaining a positive attitude and having a supportive partner can significantly aid in physical healing.