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Where Everybody Understands You
41,421 members
Feb 01, 2008

Where is Everyone?

This topic is about an ostomate reaching out to connect with others who have an ostomy. They are looking to share support, find information about support groups, and exchange everyday living tips. Here are some insights and advice shared by others:

1. The person reaching out had their second colostomy on October 6, 2007, with the first one being 20 years earlier. They live in eastern Ohio and have found it challenging to find local in-person support groups, so they rely on online forums for support. They also have an upcoming appointment with their surgeon to discuss the possibility of reversing the colostomy. Additionally, they are curious about what clothes other ostomates wear, especially when it comes to blue jeans, which now need to have elastic or stretchy waists.

2. Support and openness:
- Many people note that local support groups often don't last, but online forums can be a great alternative.
- Some ostomates prefer to keep their condition private, which can make building support networks difficult. Persistence is important, though organizers can sometimes feel overwhelmed.

3. Clothing strategies:
- For jeans, consider buying one size up or choosing styles with elastic waists until your weight and shape stabilize.
- Avoid hip-hugger or short-waist jeans, as a full pouch above the waistband can cause it to pop off.
- Other clothing options include bike shorts with oversized T-shirts, skin-tight dresses, mini-skirts, or any clothes that make you feel comfortable and confident.
- For underwear, "granny" briefs or G-strings with a wide front can help keep the pouch flat. Some people sew a small elastic loop inside the waistband to slide the tail of the bag through, which helps prevent constant readjustment.

4. Managing high-output ileostomy:
- Low-dose codeine, but only with a doctor's approval, can help slow output and assist with weight maintenance in high-output situations.

5. General attitude:
- Acceptance is crucial, whether the stoma is temporary or permanent.
- It's important to enjoy life, keep a sense of humor, and stay connected. Sharing stories online can be a great way to find support and understanding.
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