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41,406 members
Mar 06, 2020

Surviving the First 7 Months - Tips and Gratitude

Living with an ostomy can be a big adjustment, especially in the first few months. One person, who is now seven months into this journey, shared their experience of initial fears about diet, dealing with leaks, and choosing the right appliances. Despite having support from medical professionals, they found the advice from an online community to be incredibly helpful. They expressed heartfelt gratitude for the support they received during those challenging early days.

Here are some pieces of advice and insights that might help:

1. You are not alone. Many people have faced similar fears. Sharing your questions and experiences on forums like this one and UOAA.org can help reduce anxiety and provide practical solutions.

2. Give yourself time. Confidence in managing your ostomy will grow steadily with experience.

3. When it comes to food and drink, many long-term ostomates suggest eating and drinking what you like. Experiment to discover your personal tolerances rather than following overly strict restrictions.

4. Keep asking questions. Continuous learning is part of life with an ostomy because new products, techniques, and tips keep appearing.

5. The community offers both technical guidance and emotional support, allowing for honest conversations about issues that might be hard to discuss elsewhere.
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