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Oct 12, 2020

Experiences with Barbie Butt/Proctectomy surgery?

This topic is about a young man considering a surgery known as a proctectomy, or "Barbie Butt" surgery, after experiencing a severe Crohn’s disease flare-up. He had his entire colon removed previously but still has his rectum and a small part of his colon, which are now causing issues. The surgery would involve removing these remaining parts. He is understandably anxious about the procedure and is looking for advice and personal experiences regarding the surgery and recovery process.

Here are some insights and advice shared by others:

1. **Second Opinion & Medical Alternatives**
- It's important to consult another colorectal specialist to confirm the necessity of the surgery. Surgery won't cure Crohn’s, and some medications like Humira have been very effective for others.
- Common reasons for eventually opting for surgery include ongoing inflammation, mucus or bleeding, leakage, and the risk of cancer in the remaining rectal tissue.

2. **Hospital Stay & Initial Post-Op Period**
- For straightforward cases, the hospital stay is typically 5 to 7 days.
- More complex cases, especially those involving prior radiation or infection, may require a longer stay.
- Expect to have one or two drains in place for the first week or more.

3. **Healing & Recovery Timeframes**
- Uncomplicated recovery usually takes about 2 to 3 months to feel normal again.
- If there are complications or if the patient is already weakened, recovery might take 6 to 8 months.
- The surgical cavity needs to heal from the inside, making sitting uncomfortable for a few weeks. It's advised to avoid thick pads and to lean on one hip when sitting.

4. **Sitting Comfort & Equipment**
- An Air Waffle Cushion, which is an inflatable cushion, is recommended for comfort during long periods of sitting.
- Hard surfaces like bike seats and metal chairs may remain uncomfortable for a long time.

5. **Sexual / Erectile Function**
- While there is a risk of nerve damage, most men reported normal erectile function after surgery.
- Some hospitals suggest freezing a semen sample before surgery as a precaution.
- If any dysfunction occurs, there are treatments available, such as injections or medications.

6. **Other Practical Tips**
- Be prepared for "phantom" urges to defecate, which will decrease over time.
- The sensation of having "something in your butt" will go away as swelling reduces.
- Trust in an experienced colorectal surgeon is crucial, especially for nerve-sparing techniques.
- Good nutrition before surgery can aid in faster healing, and temporary pelvic spasms may occur post-surgery.

These insights aim to provide a clearer picture of what to expect and how to prepare for the surgery and recovery process.
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