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Dec 13, 2020

Severe Stoma Bleeding and Pain - Seeking Advice

This topic is about someone experiencing severe pain and bleeding from their stoma and seeking advice from others who might have faced similar issues. Here are some helpful insights and advice shared in the discussion:

- The person has already reached out to a gastroenterologist and an ostomy nurse for help. Both professionals are still trying to figure out the cause, and the nurse is even consulting with colleagues across the country.

- A CT scan has been ordered to check for a hernia. There is some disagreement between the gastroenterologist and the nurse about a photographed "bubble," with the doctor thinking it's fecal matter and the nurse suspecting it's an ulcer.

- The person is concerned about a possible ulcerated bowel and is waiting for further guidance from their doctor.

Here are some pieces of advice and insights shared:

1. Seek urgent medical review:
- It's important to see an ostomy surgeon or a WOCN nurse as soon as possible. Abnormal pain and bleeding should be thoroughly investigated.
- Be persistent and ensure that doctors take your symptoms seriously until a clear diagnosis is made.

2. Use diagnostic tests to find the cause:
- Tests like CT scans, X-rays, and physical examinations can help identify or rule out issues like hernias, blockages, ulcerations, or other bowel conditions.

3. Common sources of stoma pain or bleeding:
- A peristomal hernia might cause pressure and intermittent blockages.
- External scratches or trauma to the stoma can occur during appliance changes.
- Internal ulcerations or inflammatory bowel diseases, such as ulcerative colitis or Crohn’s, could be the cause.
- Certain foods, like poppy seeds, might irritate the bowel, leading to severe pain and explosive output.

4. Self-care practices:
- Wash and inspect the stoma carefully at each appliance change to catch any cuts, bubbles, or color changes early.
- Keep an eye on bowel output and note any changes in volume, consistency, or flow that might indicate an obstruction.
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