This topic is about stoma prolapse, which can occur after ileostomy surgery. A stoma prolapse happens when the stoma extends more than usual, sometimes significantly, especially when standing or walking. It often retracts when lying down. Here are some shared experiences and tips from others who have dealt with this situation:
1. Many people find that stoma prolapse is not uncommon and can happen weeks, months, or even years after surgery.
2. Lying flat can help the prolapsed stoma retract. Some people prefer to change their pouch while lying down to make this easier.
3. One person has managed both a hernia and prolapse for over a year and a half without needing more surgery, simply by using the lying down technique.
4. Another person experienced a painful prolapse years after surgery, but the pain went away within a couple of hours, and the stoma returned to normal. Their specialist reassured them that it was not a cause for concern, and it hasn't happened again.
5. A long-term ileostomy patient had a significant prolapse due to sutures coming loose. They needed several revision surgeries, and eventually, staples and mesh were used to secure the stoma. However, they later faced issues related to the mesh, and it was found that a lack of adequate scar tissue was the root cause.
6. Key points to remember:
- Lying down can provide quick relief by helping the stoma retract.
- Not all prolapses require emergency treatment if they reduce on their own and the pain goes away, but persistent or severe cases might need surgical intervention.
- It's important to consult a stoma specialist or surgeon if the prolapse is frequent, painful, or getting longer.
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