This topic is about dealing with early challenges after getting a temporary ileostomy, especially issues like leaks and skin irritation. Here are some helpful tips and advice for managing these initial struggles:
- Get professional help early:
- Schedule a visit with a stoma or WOC nurse. They can help you find the right fit for your stoma, which changes size and shape in the first few weeks. They can also suggest different products like wafers, rings, pastes, and belts.
- Test different systems and ask for free samples:
- Reach out to companies like ConvaTec, Coloplast, and Hollister for trial kits. These might include one-piece, two-piece, cut-to-fit, moldable, or pre-cut options.
- Keep track of what works for you. Finding the right combination of wafer type, ring, and pouch style can help eliminate leaks.
- Two-piece system advantages:
- The flange (wafer) can stay on for 7-10 days, while the pouch can be changed as needed, reducing skin irritation.
- Ensure the pouch is fully attached to prevent leaks.
- Barrier rings and convexity tips:
- If there's a sunken area under the stoma, cut a wax ring in half, stretch it, and place it underneath to fill the dip.
- Avoid using rigid convex products until the wound around the stoma has healed to prevent pressure injuries.
- Cutting and smoothing the wafer opening:
- Leave a small gap around the stoma to prevent rubbing and protect the skin.
- After cutting, smooth the edges with a warm fingertip to avoid jagged bits.
- Skin-friendly change routine:
1. Use a paper towel or puppy pad under the stoma for spills and air exposure.
2. Loosen the old wafer with adhesive-remover spray or wipes.
3. Clean with baby wipes or plain water, avoiding soaps and lotions under the wafer.
4. Shave any hair around the stoma if needed, using shaving cream and rinsing with water.
5. Pat the area dry thoroughly and let it air-dry for a few minutes if possible.
6. Dust irritated spots with ostomy or stoma powder, tapping off the excess.
7. Optionally, apply a skin prep after cleaning, then a light layer of powder using the "crusting" technique.
8. Apply a barrier ring directly to the flange or skin, align it, and secure the pouch pointing downward.
- Products for skin healing:
- Consider using Hollister CeraPlus wafers and CeraRing, which contain ceramides.
- Smith & Nephew adhesive remover and Skin-Prep, along with Safe n’ Simple peristomal cleaner wipes, are also recommended.
- Wear-time and scheduling tricks:
- The best times to change are early morning before eating or in the evening before dinner when output is low.
- Gradually increase wear-time; a 3-day cycle is common once the seal is reliable.
- Supportive gear and resources:
- Use an ostomy belt clipped to the wafer for extra security.
- Check out the UOAA (United Ostomy Association of America) website for guides on diet, clothing, activities, local support groups, and product information.
- General encouragement:
- The first 2–4 weeks are usually the toughest. Leaks tend to decrease as swelling goes down and you find the right products and routine.
- Keep experimenting, stay in touch with your care team, and remember that every ostomate experiences a period of trial and error.
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