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Mar 22, 2021

Sharp Pain Around Stoma: Seeking Advice and Experiences

This topic is about someone experiencing persistent sharp pain and a heavy sensation around their stoma, which might be a sign of a hernia. They have been dealing with this discomfort, especially after changing positions, and are seeking advice on what might be causing it and how to handle future episodes.

Here are some helpful insights and advice:

1. Likely Peristomal Hernia
- If the pain decreases when lying down but returns when sitting or standing, it might be a hernia.
- A CT scan can usually confirm a hernia, so consider having the scan reviewed by another radiologist for a second opinion.
- It's important to consult with an abdominal wall surgeon who specializes in hernias for a proper diagnosis and treatment plan.

2. Alternative Possibility: Adhesions
- Adhesions could also be causing the localized pain. Further imaging might be needed to detect them.

3. Peer Experience
- Someone else shared their experience of developing small hernias after lifting, which caused burning and pain that eventually eased. They still experience occasional cramping and nerve tingling.
- This suggests that hernia-related pain can vary and might improve over time, but it should be evaluated by a professional.

4. Finding the Right Medical Team
- The quality of medical care can differ, so it's important to find healthcare providers who listen, communicate well, and work collaboratively.
- Personal referrals and asking around can help you find skilled and patient-focused surgeons and radiologists.

5. Pain Management Note
- Medications like Bentyl (dicyclomine) and Fentanyl did not relieve the pain, indicating that addressing the underlying issue, such as a hernia or adhesions, is necessary rather than just treating the symptoms.
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