The topic is about a person who has had a colostomy for about a year following bowel cancer surgery. They are eager to start colostomy irrigation to regain an active lifestyle, which includes activities like sailing, motorcycling, and going to the gym. Unfortunately, their NHS stoma nurse has been unresponsive, and they are struggling to find private instruction. They view irrigation as the final step to improving their quality of life and are reaching out to the community for advice on how to get started.
Here are some helpful insights and advice shared by others:
1. General suitability and learning resources:
- Not everyone with a colostomy can irrigate, so it's important to have medical clearance, which the person has already received.
- There are many free video tutorials available on YouTube. Searching for "stoma irrigation" can provide useful resources.
- An example video link was shared: https://www.youtube.com/watch?v=BTR9YcgyImY
2. Starting the procedure:
- Begin with approximately 500 cc of warm water for the first session, then increase to 1000 cc the next time, eventually working up to about 1500 cc.
- Stop adding water when you feel a sense of fullness in your abdomen.
3. Establishing a routine:
- Try to irrigate at the same time each day to help train the colon. Many people choose to do it every morning.
- Some people successfully irrigate every 24 hours, while others manage every 48 hours or prefer every other day.
4. Managing equipment and pouches:
- Continue using your current pouching system while assessing the success of irrigation.
- Contact the three major ostomy manufacturers to request sample "caps," which are small, low-profile pouches for minor dribble.
- Many users switch to caps within 1–2 months as their confidence in irrigation reliability grows.
- Keep a drainable pouch available for times when your stomach is upset or when output is unpredictable.
5. Lifestyle impact:
- Successful irrigation often results in a "quiet" stoma, allowing full participation in activities like sailing, motorcycling, and gym workouts.
- Occasionally, there may be breakthrough output, but a mini-pouch or cap can provide security without being bulky.
6. Peer support:
- Several members who practice irrigation are willing to answer any follow-up questions and share their personal experiences if needed.
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