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Jun 03, 2021

Reversal success after ileostomy removal? Advice needed.

This topic is about someone who had a severe motorcycle accident that led to multiple injuries and an infection that required the removal of their large intestine. They now have an ileostomy and are considering a J-pouch reconstruction to potentially reverse it. They are seeking real-world outcomes and advice from others who have been through similar experiences.

Here are some insights and advice shared by others:

1. Personal experience with a difficult outcome:
- One person had a J-pouch created but faced chronic issues like cuffitis and pouchitis. They needed constant antibiotics and codeine, had to use the toilet every 15 minutes, and lost a significant amount of weight. After a year, they opted for a permanent ileostomy and now feel healthier and more free. They suggest discussing all potential complications, including leakage, thoroughly with healthcare professionals.

2. Accepting a permanent ileostomy:
- Another individual, after years of dealing with intestinal infections, chose to have an ileostomy and declined the J-pouch option due to the perceived risks. They have been in their best health since making this decision.

3. Choosing the right surgical team and preparation:
- The success rate for J-pouch surgery is around 75%, but it greatly depends on the surgeon's skill and experience. It's recommended to:
- Consult with at least three highly recommended surgeons.
- Ask each surgeon about their specific surgical plan, personal success rates, reasons for any past failures, and statistics on post-operative infections and re-operations.
- Review published hospital data on complication rates.
- Consider traveling to high-volume teaching centers if local expertise is uncertain.

4. Lifestyle and continence concerns:
- Someone with a similar history of colectomy due to infection empties their ileostomy every two hours to prevent accidents and is concerned that a reversal might worsen incontinence, affecting their job. They suggest asking the surgeon how often patients needed a third surgery to recreate the stoma.
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