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41,452 members
Oct 10, 2021

Adjusting to Life After Unexpected Urostomy Surgery

This topic is about someone who recently had unexpected urostomy surgery due to bladder cancer. Instead of the bladder reconstruction they anticipated, they woke up with a permanent urostomy. While they are managing the practical aspects of stoma care well, they are experiencing waves of depression and significant memory loss, which they believe is related to chemotherapy. They are reaching out for reassurance, shared experiences, and coping strategies from others who have faced similar challenges.

Here are some helpful insights and advice:

1. It's common to feel depressed after surgery, but this often improves as you become more comfortable with stoma care and regain confidence. If depression persists or worsens, consider seeking professional help, such as counseling or medication.

2. Emotional adjustment can involve stages like "why me," anger, and depression before reaching acceptance. Recognizing these stages can help you understand that what you're feeling is normal.

3. Stay connected with supportive communities, whether online forums or local groups. Sharing your experiences and hearing from others who face similar challenges can be very comforting.

4. Engage in purposeful distractions or creative activities like writing, journaling, or hobbies to help shift your focus away from negative thoughts.

5. If depression becomes overwhelming, consult a physician. Some people have found relief with antidepressants like nortriptyline.

6. Memory loss related to chemotherapy, often called "chemo brain," is real but usually temporary. Many people notice gradual improvement as their overall health stabilizes.

- Consider using practical aids like automatic bill-pay, calendars, phone reminders, and to-do apps to help manage memory issues.

7. Fatigue and lack of mental energy can sometimes feel like forgetfulness. Rebuilding your physical strength can often help improve cognitive function.

8. Some people try adding butter and coconut oil to coffee for brain support, though this is anecdotal and should be monitored for individual tolerance.

9. Other health factors, such as age, diabetes, radiation effects, and kidney issues, can also affect memory. Keep your medical team informed about any concerns.

10. Remember, you are not alone. Many long-term ostomates report living fulfilling lives after overcoming the initial challenges.
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