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40,819 members
Nov 22, 2021

New to Colostomy Care - Seeking Advice and Tips

Topic Explanation
The discussion topic "New to Colostomy Care - Seeking Advice and Tips" revolves around a new colostomy bag user seeking guidance on various aspects of living with a colostomy. The individual, having had the colostomy since November 1, is looking for advice on eating habits, managing leakage, the best setups to use, emotional responses to expect, ideas for sleeping, sexual activity, and exercise.

Advice and Helpful Insights from Replies

1. General Guidance and Resources:
- Explore the 'PREMIUM CONTENT' and 'COLLECTIONS' sections on the forum for a wide range of previously discussed topics and answers.
- The United Ostomy Association of America (UOAA) is recommended for comprehensive education on foods, blockages, skin care, clothing, products, travel, activities, and more.
- Consider joining a local support group to connect with others who can share their experiences and advice.

2. Leakage and Stoma Care:
- Stoma shape and size can change during the healing process; consult with an ostomy nurse for personalized setup recommendations.
- Experiment with different products like barrier rings and different types of bags to find what works best for preventing leaks.
- Request free samples from stoma companies to try various bags and skin care products.

3. Eating Habits:
- Monitor and possibly adjust your diet to manage gas and cramps; drinking plenty of water is beneficial.
- Some foods might need to be limited or avoided to prevent blockages.
- Eating habits can largely remain the same, but some find it helpful to eat smaller amounts or avoid certain foods.

4. Emotional Well-being:
- Be aware of emotional responses such as depression, anger, or rage, and seek professional help if needed.

5. Exercise and Activity:
- Start with light activities like walking; avoid heavy lifting during the initial healing period.
- Gradually increase activity levels based on comfort and healing progress; everyday activities like yard work can be good forms of exercise.

6. Sleeping Arrangements:
- Experiment with sleeping on your back or sides to find the most comfortable position.
- Consider using special pillows if you prefer sleeping on your stomach.
- Avoid eating late at night to reduce nighttime output.

7. Sexual Activity:
- Be patient and give yourself time to adjust;
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