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Nov 24, 2021

Recovery from Anus & Rectum Removal - What to Expect?

The topic is about what to expect when recovering from the removal of the anus and rectum, a procedure some people undergo due to anal cancer. This can be a daunting experience, and it's natural to feel anxious about the surgery and the recovery process. Here are some insights and advice from those who have been through it:

1. Outlook and Mindset
- Survivors who have lived for decades after the surgery emphasize that while the operation is challenging, it is survivable. Maintaining a positive attitude can be very helpful.

2. Hospital Stay and Early Mobility
- The typical hospital stay is around 5 days.
- The surgery and recovery can take about 10 hours, especially with a robotic approach, which results in several small abdominal scars and one larger closure site.
- It's important to get out of bed and start walking as soon as the medical staff allows, as walking is often highlighted as the most crucial goal for recovery.

3. Pain Management
- In the hospital, a combination of narcotics and acetaminophen (Tylenol) is usually provided to manage pain. Use what you need to keep the pain under control.
- Many people switch to just Tylenol once they are home.

4. Abdominal and Perineal Care
- Abdominal soreness may last for about two weeks. Coughing or sneezing can be painful, so hugging a pillow across your abdomen can help brace against the pain.
- It's important to keep the buttocks and wound area very clean and dry to aid healing.

5. Sitting and Cushions
- You may not be able to sit much initially, so be prepared to stand, walk, or lie down instead.
- Some healthcare teams advise against using inflatable donut cushions as they can put pressure on stitches. They suggest minimizing sitting time and using a small bucket to empty the pouch without sitting on the toilet.
- Others have found a very soft pillow helpful. It's best to discuss cushion options with your surgical team.

6. Ostomy Management Training
- Use your time in the hospital to learn how to empty, clean, and change your pouch with the help of wound/ostomy nurses.
- If your insurance covers it, consider arranging for a visiting nurse to help reinforce these skills once you're home.
- Searching online for "Barbie-butt surgery" can provide additional self-care resources.

7. Activity Restrictions
- Walking is encouraged, but try to limit using stairs, especially if you feel tired or unsteady.

8. Encouragement and Ongoing Support
- People who have gone through this invite you to share updates and are ready to offer continued help with any specific questions during your recovery.
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