This topic is about a person who recently had surgery and now has a permanent colostomy. They shared an experience that was both challenging and enlightening, highlighting the importance of humor and resilience in dealing with unexpected situations. Here are some helpful insights and advice based on their experience:
1. After surgery, the person was advised to take Miralax daily, but without specific timing instructions. They chose to take it at night, which led to an unexpected and overwhelming output on the third night. The lesson learned was to take Miralax in the morning and gradually reduce the dose until the stool consistency is manageable.
2. Miralax was prescribed because the person left the hospital early and needed to show bowel function. They are now reducing the dose slowly.
3. To prevent nighttime leaks:
- Use disposable hospital under-pads or towels until you find a reliable pouching system.
- If the pouch feels very full, like a "Qdoba burrito," empty it sooner or set an alarm if the output is high.
4. Emotional coping is important. It's normal to cry at first, but humor can be a great help. Over time, changing a pouch becomes routine.
5. If you experience persistent leaks due to skin contours:
- Try different brands of pouches and barriers.
- Use extra 3M tape and crescent-shaped barrier strips, though they may not work for everyone.
- Consider using StomaShield or AquaShield from Cost Medical for a smoother surface and to prevent edges from lifting.
6. Accept that occasional "floods" can happen, possibly every 6–8 weeks for some people. Keep supplies and a sense of humor close by.
7. Having a supportive partner can make cleanup and maintaining morale easier. Show appreciation whenever possible.
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