This topic is about the concerns and experiences of someone who has had a permanent ileostomy since February 2018 and still has a significant portion of their rectal stump. Recently, they have noticed some worrying changes in their condition and are seeking advice and insights from others who might have had similar experiences.
Here are some key points and advice shared by others:
1. It's common to have rectal mucus discharge when you have a remaining rectal stump. However, if you notice blood, a foul odor, pain, or fever, it's important to seek medical attention quickly. Many people suggest pushing for an urgent appointment with a gastroenterologist or colorectal surgeon.
2. Some individuals have experienced similar symptoms, which were later diagnosed as inflammation or residual disease in the rectum. Treatments like corticosteroid suppositories or "pellets" have been used to manage these flare-ups. For example, a YouTuber named Hannah Witton shared her experience of using such treatments after a rectal flare post-stoma.
3. One member recommended using Budenofalk rectal foam (budesonide) to control cycles of smelly, loose mucus. This is applied daily for about a week until the mucus subsides, and then stopped until the next cycle.
4. Blood-tinged mucus can sometimes be linked to serious conditions like cancer in the remaining bowel segment. If cancer status is unknown, it should be ruled out by a healthcare professional.
5. Some people report regular mucus buildup every 5–10 weeks, which causes rectal pressure. They manage it as expected but emphasize that new bleeding or systemic symptoms are unusual and should be checked by a doctor.
6. When you're unsure about your symptoms, it's best to rely on a professional assessment rather than trying to diagnose yourself. Possible issues could include rectal infections, inflammatory flares, cuffitis, or complications with the stump, all of which need proper investigation.
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