This topic is about the experiences and advice shared by people who have an ostomy, focusing on the use of support belts and the process of irrigation. Here are some insights and tips gathered from their discussions:
1. Many people with an ostomy wonder if they should wear support or hernia-prevention belts regularly and whether their surgeon recommended it. Often, it's the stoma or wound-ostomy nurses who suggest wearing these belts to prevent or slow down hernia development. Some people choose to wear a belt only during activities that involve lifting or other physical strain.
2. When it comes to choosing a belt, there are several options:
- Nu-Hope belts are well-regarded for their comfort and compatibility with appliances, though they can be tricky to get through insurance.
- Stealth Belts are noted for being comfortable and secure but can be pricey.
- CUI/CIU Velcro-fastened hernia belts are adjustable and can accommodate changes in abdominal size.
- Affordable elastic supports from AliExpress are available, but it's important to measure your waist rather than rely on size labels, as sizes can run small.
- Some people create homemade solutions, like a belt with a large buckle to help manage a hernia.
- Belts can become loose or tight as the abdomen changes size, especially after eating, so adjustments might be necessary.
3. For those who irrigate, finding the right technique and water volume is key:
- Water volumes can vary greatly; some use up to 5 liters with a pressurized system to manage hernia blockages.
- Abdominal discomfort is common, and some find relief by raising their left leg onto the toilet rim.
- Cone attachments might not work well with a hernia, and alternative catheters could be a better option.
- Experimenting with different water volumes, equipment, and postures is often necessary to find what works best.
- Medical advice generally discourages irrigating with significant hernias, but some people choose to continue while monitoring their own comfort levels.
4. Insurance and financial considerations:
- Insurance might not cover belts, leading some to purchase them out-of-pocket.
- Those without insurance often find it easier to buy directly from online retailers.
5. Weight changes can affect stoma fit:
- Significant weight loss can lead to excess skin around the stoma, making it hard for appliances to adhere properly. In some cases, surgeons might suggest regaining some weight to improve the seal.
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