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41,452 members
May 11, 2022

Adjusting to Life with Both Ileostomy and Colostomy

This topic is about adjusting to life with both an ileostomy and a colostomy after an unexpected emergency surgery. A new member from New Jersey shares their experience of waking up with both types of stomas and is looking for support and advice from others who have been through similar situations.

Here are some helpful insights and advice:

1. You're not alone. The forum is a great place to find support, information, and even some humor. Feel free to ask any questions, and you'll find that members are open and honest in their responses.

2. Even if you've had experience with ostomy care, managing your own can feel very different. It's normal to find it challenging at first, so be patient with yourself as you learn.

3. Having both an ileostomy and a colostomy is not very common. Often, only one is active while the other is temporary. It's important to talk to your surgical team to understand which stoma is functioning and the reasons for having both.

4. The initial period can be overwhelming due to changes in your body and the variety of supplies available. Take your time to try different products until you find what works best for you. Once you do, establishing a routine can greatly enhance your comfort and confidence.

5. Laughter and connecting with a supportive community can make a big difference in adjusting to your new normal. Many members have experienced similar situations, so don't hesitate to reach out and stay connected.
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