Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,432 members
Oct 15, 2022

Struggling with electrolyte issues as a high output ostomate - seeking advice

This topic is about managing a high-output ileostomy and dealing with recurrent electrolyte imbalances. A person who recently had ileostomy surgery is experiencing high stoma output, which is causing dangerously low levels of potassium, sodium, and calcium. This situation has led to frequent emergency room visits and significant disruptions to daily life. Despite taking medication and following dietary advice, the problem persists. A possible reversal surgery is planned in about nine weeks, and practical strategies are needed to control the output, stay hydrated, and maintain electrolyte balance.

Here are some helpful tips and insights:

1. Output-thickening foods and medication:
- Continue using Imodium (loperamide) and incorporate stoma-slowing foods like bananas, white potatoes, pasta, and marshmallows or gelatin.
- Reducing or temporarily eliminating excess liquids, especially decaf coffee and tea, can help decrease watery output.

2. Fluid and electrolyte replacement:
- Sip plain water with a pinch of table salt or use oral rehydration drinks like home-mixed Gatorade or water with electrolyte tablets.
- Eating naturally salty foods can be more effective than salt tablets for raising sodium levels.
- Limit total fluid intake if output is high; small, frequent drinks can help maintain electrolyte balance.

3. Diet investigation and professional support:
- Work with a dietitian experienced in inflammatory bowel disease to tailor your diet and identify trigger foods.
- Consider a low-FODMAP elimination plan to identify poorly absorbed sugars and carbs that may cause issues. Reintroduce foods one at a time while monitoring output.
- Keep a detailed diary of food intake and output to identify patterns.

4. Medical follow-up and testing:
- Check which sections of the small bowel were removed and request targeted lab tests to identify malabsorption or enzyme deficiencies.
- Ensure you have written guidance on hydration without a functioning colon and realistic timelines for reversal surgery.

5. Medication load limits:
- Some patients with very high output use up to 24 Imodium per day under medical supervision. If current dosing is ineffective, discuss other options like codeine, tincture of opium, or octreotide with your doctor.

6. Meal pattern adjustments:
- Eating multiple small meals instead of large portions can slow transit and reduce high output.

7. Peristomal skin protection for liquid output:
- Change your appliance every three days to minimize leakage-related skin issues.
- Avoid stoma powder if it affects wafer adhesion.
- Cleanse with diluted isopropyl alcohol to stop itching and aid healing.
- Treat raw areas with Mercurochrome or prescription steroid nasal spray for healing and better adhesion.
- Use a barrier ring under a drainable pouch for added protection.

8. Mind-set and community:
- Many long-term ileostomates manage high output successfully. Taking it one day at a time and seeking peer support can help make the wait for reversal surgery more manageable.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,432 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Hey everyone
Hello new friends!
Swimming in the Ocean with a Stoma Exposed
Social media ban for children under 16
Kerry Update
First Trip to Las Vegas Post-Ileostomy: Tips and Advice?
Showering and Sauna Tips for Colostomy Users
Dealing with Body Odor: Tips and Solutions
Wearing an Ostomy Belt at Night: Is It Necessary?
Fear of Eating Hot Dogs with a Colostomy Bag

New Topics

B. Withers Be Kind 68
Vitamin K2 Production and Testing Without a Colon
Introducing myself
Operation welling
Minimizing Stoma Output: What Foods Work for You?
PIC-A-DILLY POSSIBILITY
Hip Replacement surgery?
Managing Sjögren's Dry Mouth with an Ostomy: Tips and Strategies
THE CRIMSON FINCH
Frequent large poop coloured mucus and blood coming from rectum after 2 years having a Illiostomy, with painful rectal spasms and tummy cramps
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑