This topic is about someone who has been dealing with Crohn’s disease and underwent a series of surgeries. Initially, they had a total colectomy in 2015, which led to living with an ileostomy. In 2020, they had a take-down surgery to reconnect their intestines, hoping to restore normal bowel function. Unfortunately, this reversal has led to worsening symptoms, and they are now considering returning to a permanent ostomy. They are reaching out for advice and experiences from others who have faced similar situations.

Here are some insights and advice shared by others:

1. Many people have reported poor outcomes after ileostomy reversals, especially when a J-pouch is involved. Some advise against reversal unless it is absolutely necessary.

2. Successful reversals tend to be more common with colostomies. Ileostomy reversals often lead to issues like chronic irritation, pouchitis, cuffitis, or caustic anal output that can damage the skin around the anus.

3. Those who have returned to a permanent ileostomy, sometimes referred to as a "Barbie butt," often experience a significant improvement in their quality of life. They enjoy freedom from constant medication and have no regrets years later.

4. It can be helpful to keep a detailed list of pros and cons over time. If the pros of having an ostomy outweigh the cons, this list can be a useful tool in discussions with surgeons.

5. Surgeons might have their own biases, especially regarding youth and body image. It’s important to be direct about the pain and how it affects your life. If your current surgeon is resistant, consider seeking a second opinion.

6. Make sure any new surgeon you consult is compassionate, experienced with Crohn’s or ulcerative colitis, and open to the idea of creating a permanent ileostomy if it is clinically justified.