This topic is about a person who recently had an ileostomy, which is a surgical procedure where an opening (stoma) is created in the abdomen to allow waste to exit the body. They are experiencing persistent abdominal tightening and are trying to figure out if it's due to gas, a blockage, gallbladder issues, or post-surgical healing. Here are some insights and advice shared by others:
- The person had their ileostomy in July 2022 after a long cancer surgery and has a history of gallbladder problems, which they managed with a low-fat diet before surgery.
- For the past few days, they have felt a "metal belt" or "strings pulling tight" sensation around their upper abdomen, which is now radiating from back to front at the belt-line. This makes it difficult to sit up, and they feel as though their abdomen is being "cut in half."
- They have experienced occasional heartburn, nausea, and a rumbling stomach. There is some gas in the pouch and some output, but it usually stops overnight, which it did not do last night.
- The pain was described to a home-health nurse, who escalated the issue to a supervisor and surgeon. The team suspects a gallstone and is awaiting diagnostic tests.
- The person is drinking warm peppermint tea and wondering if the issue is gas or a partial blockage.
Additional information and questions include:
- They use Miralax daily during chemotherapy and took a double dose today.
- They have an urge to pass gas rectally but nothing passes, only a gel-like discharge.
- There is a small amount of gas and stool through the stoma, and they have not eaten solid food today.
- An indwelling urinary catheter has been painful for a month.
- They are curious about why some members recommend 100% grape juice for a blockage.
- Their surgical wound, located next to the stoma, is still being treated after a severe infection. The wound and stoma often irritate each other.
- The stoma was initially fashioned as an enlarged, oval, somewhat concave shape, and later re-sutured. They require a wax seal and wafer, and sometimes a piece of Aquasol over residual stitches. The skin has torn in that area after a blow-out.
- They feel a chronic "ripping" sensation at one spot beside the stoma and are anxious about returning to the hospital after three prior admissions.
Advice and insights shared by others include:
1. Partial obstruction indicators can include very sharp pain that worsens when bending and minimal pain when lying flat. A sudden, forceful release of stool or gas once the blockage clears can bring immediate pain relief.
2. Not all abdominal pain is related to the ostomy. It could be due to gallbladder issues, scar-tissue tightness, catheter irritation, or other organs. It's important to seek medical evaluation promptly.
3. Gallstones can cause severe, radiating pain even when stoma output appears normal.
4. To relieve gas pain, drink a cup of fluid, lie down, and gently press fingertips around the stoma to encourage gas escape. Relief should come within minutes if gas is the culprit.
5. Some members use 100% grape juice (natural, no additives) to help move intestinal contents in case of a blockage. It's a good idea to keep a bottle on hand.
6. Warm liquids, relaxation, and gentle movement can ease gas-related discomfort.
7. Post-surgical scar tissue can create feelings of "strangulation" or restriction for months. Reassurance comes from confirming the cause with imaging or a physician exam.
8. Maintain communication with wound-ostomy nurses about any unusual stoma shape, concavity, need for wax seals, use of Aquasol, and recurrent skin tears to optimize appliance fit and prevent blow-outs.
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