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Nov 27, 2022

Struggling with ULARS after ileostomy reversal

This topic is about someone who recently had their temporary ileostomy reversed after rectal cancer surgery and is now experiencing severe symptoms of Ultra-Low Anterior Resection Syndrome (ULARS). This condition can cause frequent and urgent bowel movements, pain, and incontinence, which can be quite distressing. The person is considering a permanent colostomy to improve their quality of life. Here are some insights and advice shared in the discussion:

- The person had a large portion of their rectum removed, but their entire colon remains intact. The temporary ileostomy was reversed after the surgical connection (anastomosis) had healed.

- The current symptoms are due to the loss of the rectum's ability to store waste. A permanent colostomy might be easier to manage than the previous ileostomy.

- Some relief was found by avoiding insoluble fiber like raw vegetables and fruit skins, and by eating only two meals a day. They rely on soluble fiber supplements, multivitamins, and mushroom supplements, and are using walking and yoga to strengthen their pelvic floor.

- It's important to rule out any mechanical issues first. Surgeons should check the anastomosis for any narrowing (stricture), which can be treated with endoscopic dilation if present.

- Even if there is no stricture, it can take about six weeks after reversal for the new rectum and colon to start adapting and increasing their capacity, so some improvement might still happen over time.

- Many people in similar situations have expressed empathy and understanding, acknowledging that ULARS is a common issue after such surgeries. Opting for a permanent ostomy when quality of life is significantly affected is a valid and personal choice.
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