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Dec 31, 2022

Pain and Pressure Around Stoma - Normal or Concerning?

This topic is about a person who recently had a colostomy and is experiencing some discomfort and pressure around their stoma. They are trying to figure out if what they are feeling is a normal part of recovery or if it might be something like gas, a blockage, or a hernia. Here are some helpful insights and advice shared by others:

- The person is three months post-surgery and notices that the area around the stoma sticks out more than the other side of the abdomen. They are curious if this will flatten out over time. No hernia has been diagnosed yet.

- Their output is normal, even when it's liquid, and they are staying well-hydrated. The discomfort is not severe but is described as annoying and comes and goes.

- They have adjusted their diet to avoid beans, cruciferous vegetables, and most carbonated drinks, except for the occasional glass of champagne. They are also dealing with anxiety due to a recent cancer diagnosis and are trying to find a "new normal."

Possible causes for the discomfort include:

1. A small parastomal hernia, which some think is likely.
2. Post-surgical swelling and healing of muscles and nerves, which can change the shape of the abdomen for several months.
3. Gas build-up, which is common with certain foods and can cause temporary pain and pressure.
4. A partial blockage, though this is less likely since the output is normal.

Self-checks and symptom tracking suggestions:

- Pay attention to whether the swelling increases when the pain is present.
- Monitor the volume and consistency of the output. A slowdown or absence of output could indicate a blockage.
- Keep hydration levels high to help prevent thick output and blockages.

Gas-management tips:

- Identify and limit foods that cause gas, such as broccoli, cabbage, onions, garlic, beans, and carbonated drinks.
- If gas pain occurs, try lying down and gently massaging the abdomen around the stoma to help it pass.
- Over-the-counter products like simethicone (Gas-X) may help relieve gas, though effectiveness can vary.

When to seek medical review:

- If the pain or pressure is persistent or worsening.
- If there is a rapidly enlarging bulge, which could suggest a hernia.
- If there are changes in output, such as a decrease, complete stop, or unusual odor or color.

General reassurance:

- Mild asymmetry around the stoma and intermittent discomfort are common early in recovery.
- The shape of the abdomen and internal swelling often improve over several months.

Several members suggest making a follow-up appointment with the surgeon or stoma nurse to rule out a hernia and discuss ongoing pain.
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