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41,405 members
Feb 05, 2023

Embracing My Ostomy - Enjoying Coffee and Driving Simultaneously!

This topic is about the newfound freedom and joy that can come after ostomy surgery. The person sharing their story is thrilled to enjoy simple pleasures, like drinking coffee while driving, without the constant worry of needing a bathroom urgently. They express gratitude for the freedom their ostomy has brought and wish everyone a blessed Sunday. Here are some insights and advice shared by others in similar situations:

1. Biologics history and side-effects:
- The person started with Remicade (infliximab) but developed antibodies and a skin reaction.
- They switched to Humira (adalimumab) but experienced neuropathy in their hands and arms, which still lingers mildly.
- Initially, doctors were skeptical about these side-effects, leading the person to stop Humira on their own.
- They haven't tried Gattex (teduglutide) but hope others have positive results.
- They advise staying alert to any new or unusual side-effects while on biologic therapy.

2. Life-saving and quality-of-life improvements:
- Many people feel their ostomy "saved my life" and ended constant pain and discomfort.
- They can reclaim daily routines without worrying about bathroom locations or missing events due to urgency.
- They can multitask, like walking, chewing gum, cooking, or simply enjoying coffee, while their pouch manages output.

3. Better sleep and reduced bathroom trips:
- No longer waking up several times a night for bathroom visits, leading to more restful nights and improved well-being.

4. Stable weight and wardrobe:
- Avoids dramatic weight changes caused by medication cycles, eliminating the need for multiple sets of clothes.

5. Monitoring medications:
- Some became sicker on biologics like Remicade and Humira, with surgery being a turning point.
- A member planning to start Gattex (teduglutide) is concerned about side-effects, and the community encourages vigilance and sharing experiences.

6. Emotional adaptation:
- Some feel gratitude and even "love" their bag, while others are thankful for survival but frustrated by the lack of better early treatments.
- Humor and camaraderie, like joking about "pooping while cooking," help many adjust and stay positive.

7. Practical perks:
- Saving money on toilet paper.
- Freedom from constantly needing to know the location of the nearest bathroom.
See full discusison
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