The topic is about the experiences and challenges faced by individuals who have undergone an ileostomy reversal, especially when only a small portion of the bowel remains. The main concern is how severe the urgency to use the toilet becomes after such a procedure. Here are some insights and advice shared by others:
1. The type of reconstruction matters:
- An ileorectal anastomosis, where the small bowel is connected to the rectum, can work well for some people, with no urgency issues reported by one member.
- J-pouches or other small-bowel reservoirs are often created to help reduce the frequency and urgency of bowel movements, though results can vary greatly.
2. Without a colon, expect looser and more frequent bowel movements, as the colon usually absorbs water and provides storage.
3. Frequent liquid stools can cause skin irritation or burning around the anus, so protecting the skin is crucial.
4. Continence relies on having a healthy and functional sphincter.
5. Factors like diet, the health of the small bowel, and individual anatomy play a significant role in urgency and frequency.
6. It's important to have a detailed discussion with your surgeon about your anatomy, surgical options, and the potential benefits and risks before deciding on a reversal. Many people choose to keep their ileostomy due to quality-of-life considerations.
7. If a reversal becomes unmanageable, going back to an ileostomy is an option.
8. Reading about others' experiences can be helpful. Some members have described severe burning and frequent bowel movements after direct small-bowel-to-anus reconnections.
9. One person shared their long-term experience of living with a J-pouch for 18 years, dealing with nighttime accidents, and eventually opting for a permanent ileostomy, which they found to be a better solution.
10. Another member mentioned that finding an ostomy appliance that works well with sensitive skin might require trying several different systems. They tested eight before finding the right one, so returning to an ileostomy can be a viable option.
11. Having a trusting, ongoing relationship with an experienced colorectal surgeon is emphasized, as this partnership is often lifelong for those considering or living with a reversal.
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