This topic is about managing the discharge of mucus and blood from the rectum after having an ileostomy, which is a surgery often performed for severe ulcerative colitis. The person is about 10 to 11 weeks post-surgery and is experiencing this discharge twice a day, which sometimes includes blood. They are seeking advice on whether this is normal, if it poses any health risks, and how it might affect future surgery plans.
Here are some helpful insights and advice from others who have experienced similar situations:
1. Normal range and time course:
- It's common to have mucus discharge for several months after surgery. The frequency can vary from several times a day to once a week or less.
- The color and volume of the discharge can change, and bleeding often indicates active colitis. It's important to keep your doctor informed.
- Over time, usually within 6 to 12 months, the discharge often decreases. Activities like straining or lifting heavy objects might temporarily increase it.
2. Medical management:
- Treatments like rectal mesalamine suppositories and corticosteroid foam are often used to manage residual colitis and reduce mucus and blood.
- If bleeding worsens, some doctors may prescribe a short course of generic suppositories.
- In some cases, a small anal "ring" device can be implanted to help manage discharge, though this is not suitable for those with Crohn’s disease.
- Controlling colitis in the rectal stump is crucial before considering reversal surgery, as uncontrolled inflammation can lead to complications.
3. Everyday coping strategies:
- Try to empty the rectal stump on a regular schedule, such as in the morning and before leaving home, to minimize unexpected discharge.
- Absorbent products like Butterfly Pads, B-Sure Pads, panty liners, or folded paper towels can help manage leakage.
- Be cautious with adhesive liners, as they can sometimes cause spills if they catch on clothing.
4. Diet and lifestyle triggers:
- Some people find that certain foods and drinks, like orange juice, carbonated drinks, jam, beer, and other alcohol, can trigger discharge. Eliminating or testing these foods might help.
- Stress and heavy physical activity can also provoke episodes.
5. When to seek help:
- If you notice a sudden increase in blood, a foul odor, or feel pressure or pain in the rectal area, it's important to seek medical attention to rule out infection or a flare-up.
- While long-term drainage can be managed, regular check-ups are important to maintain rectal health, especially if considering reversal surgery.
6. Support resources:
- An ostomy or wound-care nurse can provide support at home or in a clinic, and many insurance plans cover these visits.
- Searching online forums for terms like "rectal stump colitis" and "mucus discharge" can provide additional personal experiences and advice.
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