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Aug 02, 2010

Feeling Trapped Post-Ostomy Surgery, Need Advice

Topic Explanation
The discussion revolves around a person who had an ostomy surgery five months ago and is experiencing feelings of being trapped and uncomfortable post-surgery. They are dealing with sensations of wetness and pressure in areas where they no longer have bodily functions due to the surgery. The individual is seeking advice and reassurance about these sensations, specifically asking about the fate of the rectum post-surgery and how to cope with the new changes.

Advice and Insights from Replies
1. Phantom Sensations:
- Several participants mentioned experiencing phantom pains and sensations, such as feeling the urge to go to the bathroom. These are common and tend to decrease over time.

2. Emotional Adjustment and Support:
- It's important to acknowledge the emotional and psychological adjustments needed after such a life-changing surgery. Engaging with support groups and staying connected with others who have gone through similar experiences can be beneficial.
- An ostomy nurse or a doctor should be consulted for medical advice and to address any concerning symptoms.

3. Activity and Routine:
- Gradually resuming activities and establishing a routine can help in coping with the changes. Simple activities like walking and getting out of the house are recommended to improve mood and confidence.

4. Grieving Process:
- Recognize that grieving the loss of body parts is a natural process. It's okay to feel upset and it's important to give yourself time to adjust to the new reality.

5. Practical Tips:
- Using thin panty-liners can help manage the sensation of wetness.
- Regular check-ins with healthcare providers can reassure and guide you through the recovery and adjustment process.

6. Long-term Perspective:
- Many participants emphasized that while the adjustment is challenging, the situation improves over time. They shared personal anecdotes of returning to normal activities and even engaging in new ones.

7. Humor and Positivity:
- Maintaining a sense of humor and a positive outlook can be powerful tools in coping with the changes brought by ostomy surgery. Sharing experiences and stories with others can also provide comfort and a sense of community.
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