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Aug 16, 2010

Facing Stoma Revision Surgery: Seeking Advice and Support

Topic Explanation:
The discussion revolves around an individual who has been dealing with a crooked stoma that has caused persistent leakage issues and skin breakdown. Initially, the person's original surgeon refused to correct the stoma, claiming it was perfectly made. After enduring ongoing problems, the individual sought a second opinion and found a new surgeon willing to perform a revision surgery. Despite knowing the benefits of the surgery, the individual is experiencing significant anxiety about undergoing another surgical procedure, which would be their fifth in six years. They are seeking advice and support from others who may have had similar experiences with stoma revision surgeries.

Advice and Insights from Replies:
1. Normalizing Surgery Anxiety:
- It is common to feel nervous about surgery, especially if you've undergone multiple procedures. Several forum members shared their experiences of feeling anxious before surgeries, indicating that such feelings are normal.

2. Personal Experiences with Stoma Revision:
- One member shared that their stoma revision was not as significant as the original surgery and encouraged the individual not to worry too much about the complexity of the procedure.
- Another member had their stoma moved to the other side and repaired for better functionality, suggesting that revisions can indeed address issues like the desire to use different types of pouches.

3. Emotional Support:
- Members expressed empathy and sent good wishes, emphasizing the community support available. They encouraged staying connected and sharing updates, which can provide emotional comfort.

4. Comparison of Surgery Types:
- One response highlighted that elective surgeries might feel more nerve-wracking than emergency surgeries because there is more time to think about the risks and outcomes, which could explain the heightened anxiety the individual is experiencing.

5. Criticism of Previous Medical Advice:
- There was criticism towards the original surgeon who refused to acknowledge the problem with the stoma, with a member expressing that a stoma should not cause ongoing significant issues and if it does, it needs to be addressed.
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