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Sep 29, 2010

Has Anyone Else Seen Health Improvements Post-Ostomy?

This topic is about the changes in health and overall well-being that some people experience after undergoing ostomy surgery, specifically a colectomy and ileostomy. The discussion is sparked by one person's observations of their husband's health improvements following surgery for severe ulcerative colitis. Here are some insights and advice shared by others:

- Some people notice unexpected positive changes in their health after surgery, such as milder night sweats, improved skin tone, and the ability to gain and maintain weight for the first time in years.

- There is curiosity about whether a chronically unhealthy colon might have been affecting overall health, and whether others have experienced similar improvements unrelated to their original bowel disease.

- The rectum was left in place for the possibility of future reversal, and so far, there is no rectal inflammation.

- The husband had been on repeated courses of prednisone for 6-7 years, which left lingering side effects like temperature-sensitive teeth and leg cramps. There is skepticism about the long-term use of drugs like prednisone and chemotherapy, as they can sometimes cause as many problems as they solve.

- Many people with ulcerative colitis or Crohn’s disease report broad health improvements after surgery, such as better skin color, weight stabilization, more energy, and the ability to reduce or stop medications.

- Stopping medications like Methotrexate, Salazopyrin, and Prednisone/Prednisolone is credited by some with clearer skin, improved body shape, and higher energy levels.

- The degree of improvement often depends on the quality of life before surgery and the reason for the surgery. Those debilitated by inflammatory bowel disease (IBD) often feel much better, while those who needed surgery for other reasons, like cancer or surgical error, may feel worse due to complications like blockages or chronic pain.

- Not all experiences after surgery are positive. Some people continue to struggle with low energy, dietary restrictions, and ongoing rectal or anal disease. Continued Crohn’s activity may require intensified treatment and can lead to symptoms like weight loss, joint pain, and hair thinning.

- Vitamins and supplements can be helpful, but they cannot fully replace the nutrients from a varied diet.

- One person reported frequent colds and flu, though it is unclear if this is due to surgery, lowered immunity, or exposure at work.

- The emotional takeaway is that individual experiences vary greatly. Factors like the severity of the previous disease, remaining bowel or rectal involvement, and freedom from medications all influence overall well-being after ostomy surgery.
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