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Oct 21, 2010

Fear of Using Public Restrooms with an Ostomy

This topic is about managing the fear of using public restrooms after getting an ileostomy. The person who started the discussion is comfortable managing their pouch at home but feels anxious about doing so in public, which limits their ability to go out in the mornings or enjoy activities like breakfast outings, full-day trips, travel, and early-morning golf. They are looking for ways to regain confidence and are curious if others have similar experiences.

Here are some helpful tips and insights shared by others:

1. Carry discreet supplies:
- Use a small bag or backpack to carry essentials like spare pouches, flushable liners, closed-end disposable pouches, adhesive remover wipes, odor neutralizers, tape, paper towels, baby wipes, and bags for waste.
- Some people carry liner-loaded pouches in dog-waste bags for quick changes, and others bring large garbage bags and fresh underwear for emergencies.

2. Use products that simplify public emptying:
- Flushable liners allow you to easily remove and flush the contents of the pouch.
- Closed-end disposable pouches can be tied and disposed of like a diaper.
- Odor neutralizers and wipes can help manage smells and cleanup.

3. Choose friendlier restrooms:
- Look for handicap or family stalls with more space and privacy, or single rooms at gas stations and airport lounges.
- Automatic-flush toilets and porta-potties can offer more convenience and solitude.
- Practice using restrooms in familiar, clean places to build a routine.

4. Develop quick techniques:
- Empty the pouch while standing and facing the toilet, using toilet paper to prevent splashes.
- For a full change, drop the pouch into a bag, clean up, and apply a new pouch quickly.
- Some men use urinals for liquid output with large drainable pouches.

5. Mind-set and coping strategies:
- Remember that most people aren’t paying attention, and ignore any rude comments.
- Remind yourself that the stoma is life-saving and shouldn’t limit your activities.
- Gradually increase the length of outings to build confidence, as many people with ostomies travel extensively.

6. Emergency tips:
- In an emergency, drain the pouch into a freezer bag, seal it, and dispose of it later.
- Keep water handy to rinse the pouch if needed.
- If a major leak occurs, clean up calmly and change clothes in a private stall if necessary.

7. Dietary and medical pointers for high-output ileostomies:
- Reducing fiber and increasing protein can help manage output.
- Consult your doctor about medications that slow gut transit, especially if you experience blockages.

These tips and products can help make managing an ostomy in public more comfortable and less stressful.
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