This topic is about adjusting both emotionally and physically after getting a new ileostomy. The person sharing their experience has been living with Crohn’s disease for 15 years and recently underwent surgery to remove their entire colon and part of the rectum, resulting in the creation of an ileostomy. They are dealing with discomfort, trouble sleeping, and feelings of ugliness and helplessness, and they are seeking reassurance and advice on coping with these changes.

Here are some helpful insights and advice:

1. Your feelings are completely normal. Losing a part of your body can feel like a loss or amputation, so it's okay to grieve. Allow yourself to cry and understand that emotional adjustment can take weeks or even months.

2. It's still very early in your recovery. Physical healing, changes in stoma size, and a return of energy can take several months. Be patient with yourself and try not to rush the process.

3. If you are tapering off steroids, be aware that this can cause mood swings and stress, but these should ease as you finish the taper.

4. Acceptance will grow as you establish new routines. Over time, the stoma will become less of a focus, and you will likely be able to resume most daily activities, such as running, traveling, and working.

5. Try requesting free samples from different suppliers to find a pouching system and wafer that work well for your skin and lifestyle. Many people eventually find one that suits them and then hardly notice it.

6. Consider wearing looser or adaptive clothing to feel more comfortable. Some people find security in using specific ostomy support garments.

7. For better sleep, experiment with body pillows or side-lying positions. As your diet normalizes, you may find that output decreases overnight.

8. Keep a positive perspective by setting small goals, like buying a new outfit or planning a weekend trip. Focus on what you can do and try doing acts of kindness for others to shift your attention away from the stoma.

9. Joining an ostomy support group, whether online or local, can provide a space to share tips, express feelings, and see others living well with ostomies.

10. If your sadness feels overwhelming, consult your surgeon, stoma nurse, or primary doctor. Short-term counseling or medication can be very helpful.

11. Remember that your stoma saved your life. Some people find it helpful to name their stoma, celebrate the advances in modern medicine, and maintain a sense of humor to stay positive.