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Dec 01, 2010

Living with Recurrent Hernias After Cancer Surgery

Living with recurrent abdominal and peristomal hernias after cancer surgery can be quite challenging. This topic revolves around a person who has survived rectal/anus cancer and is also managing lupus. They have experienced multiple hospitalizations for hernia and bowel-obstruction surgeries. Their most recent surgery involved hernia repair, small-bowel resection, and treatment for various infections, followed by a week in intensive care. Current medical exams reveal:

- A large incisional hernia in the lower abdomen, wrapped around the small bowel, causing partial obstruction.
- A smaller hernia over the stoma, resulting in daily pain.

Due to the risks involved, surgeons have advised against planned repair, suggesting only emergency surgery if necessary. Everyday activities like walking, climbing stairs, or standing without support are painful, and lifting, bending, and stretching are not allowed. The individual is seeking non-surgical ways to support the abdominal wall and reduce pain. Here are some helpful suggestions:

1. Consult an ostomy nurse: They can provide guidance on support garments and custom-fit or special-order belts that suit the stoma position and hernia size better than standard options.

2. Consider hernia belts and support garments:
- There are many styles available globally, and some can be custom-made, such as those provided by the NHS in the UK.
- Wearing a belt during activities can help prevent further herniation and reduce discomfort, although it might feel bulky.
- In Australia, associations offer hernia belts, support knickers, and unisex boxer-style garments at little or no cost for ostomates.

3. Try DIY interim support: Use thicker underwear or panties, cutting a slot for the pouch so the waistband and fabric hold the stoma area and abdomen firmly while still allowing for easy bag emptying.

4. If pain control is inadequate, consult a GP or pain-management team instead of relying solely on increased opioids prescribed for lupus.

5. Early professional fitting of support garments can help prevent secondary issues like back strain and spinal pain, which are common with long-standing hernias.
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