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41,452 members
Feb 01, 2011

Disappointed by the Ostomate Community's Reception

This topic is about a new member who joined an ostomy forum hoping to find a supportive community but was met with some unpleasant interactions. Feeling upset, she initially decided to leave the forum. However, after receiving many kind and supportive responses, she realized it was just a case of bad timing and decided to stay, inviting others to reach out to her.

Here are some helpful insights and advice for navigating such situations:

1. Try not to judge the entire community based on the actions of one disruptive person. Most of the 5,500+ members are caring, helpful, and respectful.

2. The forum administrator has already taken action by removing the individual who caused the disruption, helping to restore a positive environment.

3. Explore other discussion threads. Over 90% of them are filled with compassion, useful information, and even humor.

4. If you come across rude comments again, it might be best to ignore them or stop reading. Focus on the constructive and supportive posts instead.

5. Feel free to share your experiences and ask questions. Many members have practical, first-hand knowledge that can be incredibly valuable, sometimes even more so than what doctors and WOC nurses can offer.

6. Keeping a sense of humor, a positive attitude, and having support from family and friends can make living with an ostomy much easier.

7. Consider giving the site another chance. Most members are eager to welcome newcomers, offer guidance, and share both medical advice and everyday living tips.
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