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41,418 members
Jan 10, 2009

New Member Seeking Advice on Ostomy Supply Challenges

This topic is about finding ways to manage the costs and access to ostomy supplies without having insurance coverage. Julie, who has been living with an ileostomy since she was four, is facing challenges after losing her government benefits and her husband's health plan, which never covered ostomy products, was canceled. She is trying to make ends meet by purchasing supplies on eBay, but they often don't last as long as expected. Julie is part of a program that provides supplies, but they run out before the next allotment, and she is worried about staying eligible. She is seeking advice from the community on how to manage her situation.

Here are some suggestions and insights that might help:

1. Reach out to manufacturers directly:
- Companies like ConvaTec and Hollister may offer cash discounts or patient assistance programs that could help beyond the current program Julie is enrolled in.

2. Utilize nonprofit and peer resources:
- The United Ostomy Associations of America (UOAA) has local chapters that often collect and redistribute donated supplies. They can also connect you with an ostomy nurse for help with product issues.
- Friends of Ostomates Worldwide-USA (FOW-USA) ships donated ostomy supplies for free. It's important to explain your financial situation when applying.
- OstoGroup provides ostomy products at no cost except for shipping. They are supported by major manufacturers and are listed on WOCN resources.

3. Look into state or regional ostomy charities and contact groups:
- These organizations might have donation programs similar to those in the U.K.’s National Health Service environment.

4. Consider cash discounts:
- Some supply companies or medical distributors might offer discounts if you are paying out of pocket.

5. Community support:
- A community member in Tennessee has offered "a few hundred" ConvaTec one-piece drainable pouches (pre-cut 1¼″ flange) at no charge, which could be coordinated if the size is suitable.
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