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Sep 28, 2009

From Ileo to Colostomy: A Personal Journey and Struggles

This topic is about someone who transitioned from an ileostomy to a colostomy and is now dealing with issues like excessive gas, noise, and "puffiness" or ballooning of the pouch. These challenges have made social situations difficult and have affected their mood. Here are some helpful tips and insights shared by others who have faced similar issues:

1. For air travel, consider requesting a Special Service Request (SSR) and an aisle seat to avoid pressure on the pouch. Also, try to avoid gassy foods before flying.

2. A very low-carbohydrate diet can help manage gas and ballooning, especially if you have diabetes.

3. To manage gas, consider a daily regimen of probiotics and anti-gas tablets. Some have found success with "Digestive Health for GAS" tablets and Kyo-Dophilus capsules, taken morning and evening.

4. Adjust your food and drink intake by identifying and limiting high-gas foods like sweet corn, broccoli, beer, sodas, milk, cheese, greens, and large carbohydrate meals. Eating smaller, more frequent meals can also help.

5. Stay hydrated by drinking plenty of water, which can help maintain stool consistency and reduce odor.

6. For mechanical solutions, manually "burp" the pouch when necessary, preferably in a restroom or outside. Regular colostomy irrigation can also reduce gas and allow for the use of a smaller stoma cap.

7. Socially and psychologically, if noise occurs in public, you can pass it off as stomach rumbling. Remember that everyone has bodily issues, and focusing on your positives can help ease embarrassment. Don't let these challenges stop you from enjoying activities like dancing.

8. When traveling, use the airline's SSR service and choose an aisle seat for more comfort and accessibility.

9. Keep in mind that ongoing trial and error with products and diet can eventually reduce leaks and gas. It's important not to isolate yourself; reaching out to others for support can make a big difference.
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