Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
40,879 members
Jun 22, 2010

New Member Sharing Journey with Ulcerative Colitis

Topic Explanation
The discussion revolves around a new forum member sharing their personal journey with Ulcerative Colitis (UC). Initially misdiagnosed with various other conditions, the individual underwent significant medical trials including the use of steroids and immunosuppressants, which were ineffective. This led to the decision to undergo surgery to receive an ileostomy. The member expresses mixed feelings about living with an ileostomy bag, especially considering their young age and desire for a normal lifestyle, such as wearing a bikini without attracting attention. They are contemplating a Pelvic/J-Pouch surgery but are uncertain due to the pros and cons associated with it.

Advice and Insights from Replies
1. Shared Experiences and Emotional Support:
- Other members empathize with the initial poster's experience of misdiagnosis and the challenges of dealing with severe UC, indicating that such experiences are common within the community. This shared experience helps in forming a supportive network.

2. Medical Insight and Personal Opinion:
- One member shared their similar experience with UC, including ineffective treatments with steroids and immunosuppressants, leading to surgery. They mentioned that even when medication temporarily resolves UC, it can re-emerge, suggesting that an ileostomy might be a more stable solution despite its challenges.

3. Concerns about J-Pouch Surgery:
- It was noted that while a J-Pouch can be an alternative to an ileostomy, there is a risk of developing Pouchitis, an inflammation of the J-Pouch, which though often treatable with antibiotics, is a significant consideration for those thinking about this surgery option.

These insights and shared experiences provide a foundation of understanding and support for individuals dealing with similar health challenges and decisions regarding their treatment options.
See full discusison
Gray Logo for MeetAnOstoMate
Why Join MeetAnOstoMate?

This is a remarkable community of 40,879 members.

You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.

And it's not all about ostomy - there is friendship and relationships too.

Privacy is very important - your profile is not visible to the outside world.

Join Us

Popular Topics

Au revoir, adios, さようなら , Toodle loo 
SEARCHING FOR MY LOST SHAKER OF SALT
WORD FOR WORD
Do Ostomates Eat Beans Regularly?
Advice Needed on Ostoform Barrier Rings and Hydrofera Blue Dressings
Back on Line
Exercising
New here
Pre op tomorrow
Tips for Boosting Appetite After Ileostomy

New Topics

Eating Kabsa Sauerkraut with an Ileostomy: Is It Safe?
My name is Doug and I am 76 years young living in Queensland Australia .
Early in the process
Cancer Health Summer 2025
Seeking Recent Scientific Journals on J-Pouch
Finally Reconnected After 5 Years with Crohn's
Hollister Urostomy Pouch Ballooning Issues
Social status rockets after stoma!!
People living in Crystal Palace shouldn't throw stomas.
Chemical Smell from Hollister Bag Cover: Anyone Else?
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Join
Currently Online: 59  
↑