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41,419 members
Jun 22, 2010

New Member Sharing Journey with Ulcerative Colitis

This topic is about someone who has been living with an ileostomy for a year due to Ulcerative Colitis and is now considering switching to a Pelvic or J-Pouch. This decision comes after a long journey of misdiagnoses and treatments that didn't work, leading to the creation of an ileostomy. Now, feeling well-adjusted and accepted by friends, the person is exploring the possibility of a J-Pouch to have more freedom, like wearing a bikini without a visible pouch. They are seeking advice from others who have been through similar experiences.

Here are some insights and advice shared by others:

1. Many people have experienced similar journeys of misdiagnosis and treatment failures before ending up with an ileostomy. This shared experience can be comforting, knowing you are not alone.

2. One person shared that even when medications seem to manage severe Ulcerative Colitis, the disease often returns. They found living with an ileostomy to be more reliable than waiting for a potential relapse.

3. Pouchitis is noted as a common downside of a J-Pouch, but it is usually manageable with antibiotics.

4. A member who recently had surgery is using Coloplast ostomy bags and is open to chatting during the day to offer practical recovery tips.
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